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Question: What is one thing you wish people knew about Epilepsy?

My answer:
Not everyone who experiences seizures , fall to the floor and shake.

* I'd love to hear your thoughts

#parentperspective Wish

  1. That I look, act, make plans, appear completely the same as everyone else. But I have a "little blip" that you can't see on me or in me everyday. But something might happen where I start doing some odd things but talk to you, or even fall all the floor unconscious and shake all over. That is the blip, the epilepsy, the seizures. I would really appreciate it if you help me keep safe, like not fall on the train tracks or anything, and I'll always do the same for you.

    1. , non visible disabilities, including epilepsy can be difficult to see . Thank you for sharing your thoughts .

  2. I want people to know that (for me) having a neurologist who is a well informed clinician, is compassionate, is willing to let me be part of my care team, has a good sense of humor, and has time to meet my medical needs are essential to my well-being. I consider myself blessed to have a neurologist who has four of these five characteristics. However, the one characteristic he lacks supports the four he has. Care to guess which one he doesn't have?



    1. That's it!

    2. , I'm sure doctors and neurologists would love to have more time with each patient , to help them with their unique individual health care needs, sadly they just don't , due to scheduling etc .

  3. If you ever had a migraine cocktail they will give/send you into a seizure. It did me. I have epilepsy and PNES!! They ER gave it to me!!

    1. ,
      Omgoodness , how are you doing today , both mentally & physically?

  4. Education and help fund to find a cure.
    So many campaigns to find other disorders, big push for Epilepsy is needed

    1. yes , I totally agree .
      Maybe to fund awareness commercials as well, other causes have them , why not Epilepsy Awareness?

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