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Read conversations, start a discussion, and connect with others about epilepsy.

SUDEP Fear in Epilepsy

A person living with epilepsy may experience serious complications, and the fear of those complications is legitimate and real. We would like to ask the community: Do you fear SUDEP...

Epilepsy in Cooler Months

Does the change in seasons from warm to cool impact your epilepsy? Do colds or the flu trigger seizures for you?...

Types of seizure

I heard, there are some different types of seizures depending on the diagnosis, duration and frequency. So far, I couldn’t pinpoint my problem even though I did some tests. The...

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side...

Looking for answers

Hello everyone my name is Drew and I am 38 years old as have had tonic clonic seizures since I was 7 and got them under control at 12 with...

First time seizure

Hi there So i’m a first year college student and I had my first grand mal seizure a few days ago. It was pretty bad, I was shaking really violently...

waking up and having a seizure

god dam. waking up and going straight in to a seizure completely sucks. I have been feeling rough (actually, I feel roughter than usual, I'm even surprised) hope my day...

Prolific US author advocating putting things in person's mouth having a seizure!

Reading 'My Sister's Keeper' by Jodi Picoult who it's said does masses of research... to find her characters advocating putting things in the mouth of a person having a grand...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features like seizure tracking, alerts, or any other functionalities...

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...

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