I have to start all over

I’ve had epilepsy for 11 years. Recently, my doctor started tapering me off my medication. I’d been on 3,000 mg of Keppra for years which we both agreed was way too much. I was extremely aggressive back then; I’d break things, punch walls, even smash windows. Over the next few months, we reduced the dose to 500 mg, and I started to feel like a new person.

My doctor said that if a patient is seizure-free for more than two years, they usually try to remove the medication completely. So she told me to stop taking Keppra altogether. I asked if she was supposed to taper it down more slowly, but she said no just stop taking the 500 mg. I’m also on 200 mg of Lamictal.

Last night, after being off Keppra, I had a seizure in my sleep. My mom said she found me gasping like I couldn’t breathe. I really thought that part of my life was behind me, but I guess it’s back. My whole body’s sore now, and I can barely walk.