Epilepsy Diagnosis Experience

With 1 in 3 people having at least one seizure in their life, there is no urgent sense of fear or worry as you go to the doctor. They do say there is a possibility that you may have epilepsy if you have a seizure again (they never said the time frame); my next seizure occurred less than a week later.

The news of you having epilepsy goes in one ear and out the other, as you have never heard of the term or truly understood what it meant. Honestly, you may never know the true meaning of epilepsy besides what the doctors say, and the common knowledge of epilepsy is more than seizures.

I felt my body become numb as everything carved in and the voices disappeared. Now you are hearing this doctor talk about going to a neurologist and having to start that process and having to obtain the information without a “how are you feeling after this news?” or “is there anything you want me to go over again?”

My experience is a blur as to receiving the news, and sadly, one of the cases where the doctors were not helpful in explaining epilepsy or easing my mother's and my racing minds. Now I have to go get an MRI and what they call an EEG, which I admit I make a mistake with the pronunciation of the abbreviation as EGG.

I feel jealous of those who had a great experience with a doctor explaining epilepsy and then getting recommended to a great neurologist who truly cares for your epilepsy journey and truly assists you medically, and not just focusing on the checklist.