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Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?

  1. have you heard of the anti Sufication pillow

    1. My husband is usually there. I was diagnosed with epilepsy 3 years ago. I've had about 4 major seizures in that time.
      He doesn't get too worked up, thankfully. I'm usually clenching my fists, grinding my teeth, sweating, and maybe some convulsions.
      Afterwards, there's usually a migraine for a few days, everything tastes weird, lots of memory loss, and confusion.
      The last one, he was at work so after I texted him and let him know I felt one coming on, he sent my mother in law and step son to check in on me.
      I ended up having 3 seizures.
      Son couldn't make me sit down for a while. I was confused, then slept about 6 hours, and couldn't eat anything the rest of the day.
      I'm lucky to have support. I only wish I could pinpoint the triggers better. I don't know what caused my last 2 convulsive seizures.

      1. fgfhtfngv

        1. Hi there, we couldn't quite make out what you've shared with the community - please feel free to share again! We are here for you. Warmly, Kailah (Epilepsy Team Member) 💜

      2. My husband has nocturnal tonics so I make sure he can't fall off the bed and just wait for it to finish. I usually spend the next 30 mins trying to stop him getting up out of bed while still in a confused state.

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