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Will You Take Our 2023 In America Survey?

Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation in this survey by learning more about the real impact of epilepsy: https://bit.ly/3CWTxzd

  1. GMORNING MY NAME IS BILL M. CARTER JR.,MY QUESTION IS WHY WE DON'T HAVE A TOWN HOUSE COMMUNITY FOR PEOPLE WITH (EPILEPSY) LISTEN, OUR PARENTS DIE,OUR SIBILING ARE LIVING THEIR OUR LIVES. WE SHOULD HAVE THIS IN EVERY STATES SO WE WON'T BE ALONE IN LIFE. SOME HUSBAND CAN'T DEAL WITH IT, SOME WIVES CAN'T DEAL WITH IT, AND CHILDREN JUST WANNA BE GROWN UPS. I STARTED HAVING MY SEIZURES AT THE AGE OF (7) I'M A BLACK MAN NOW,WHO'S CHILDHOOD WAS BEING ABUSED AT ALL THE TIME. SO CAN YALL HELP ME OUT I'M WORKING, BUT I DON'T KNOW HOW LONG,THINK ABOUT ME.

    1. thank you so much for sharing with the community. Living with epilepsy must be a difficult journey and one that can feel like a burden to caregivers which is extremely unfortunate. I found these articles on our site that may be helpful:
      https://epilepsydisease.com/levels-care
      https://epilepsydisease.com/community-resources

      In addition, I found this outside resource that may also be helpful for you: https://www.epilepsy.com/connect/forum-archive/living-epilepsy-adults/housing-options-uncontrolled-epilepsy

      Please know we are here for you and we are wishing you the very best. Warmly, Kailah (Team Member)

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