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Read conversations, start a discussion, and connect with others about epilepsy.

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

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Does Weather Impact Your Seizures?

Has anyone experienced break out seizures due to unstable weather lately?!?? Like out of no where… just boom; seizure. But the weather has been so upside down and outta control...

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Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

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After effects of have a seizure

I used to be 6 years free of having any seizures. Unfortunately in early December of last year I had a grand Mal seizure that went static, I'm not sure...

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Coping with AEDs in far off places

How do you cope taking regular AEDs when in a very different time zone? I would so like to travel but have to say no only due to very different...

Active 4 days ago

Seizures with no medical answers

I have been having seizure episodes for a little over 2 years now. Some times they mimic gran mal seizures and other times it will mimic absence seizures. I have...

Active 5 days ago

How many seizures do you have annually

As mentioned, I am an oldie in the UK. Last month I was very surprised but pleased to hear the amount of seizures one experiencing annually nowadays...

Active 5 days ago

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

Active 6 days ago

Eyelid fluttering

Hi everyone! I was diagnosed with Juvenile Myoclonic Epilepsy 10 years ago and have been on 200mg of Lamictal twice a day since then. Last year, I started having really...

Active 6 days ago

Left temporal lobe epilepsy medications

If anyone here has left temporal lobe epilepsy and has had success with medications that have stopped your seizures please let us know which medications you’re taking. Thanks!...

Active 7 days ago

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...

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