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Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side effects. If you currently take AEDs what side effects have you experienced?

  1. Constant exhaustion,having short term memory being non existent.
    My speech,word finding having stop start conversations.
    Not remembering,words or conversations after an hour.
    Not being able to send a text message that isn't a paragraph long.

    1. thank you so much for your response. How are you currently doing? We hope you've been able to navigate through these side effects. Wishing you all the best! Kailah (Epilepsy Team Member)

  2. memory

    1. Headaches and stuffy nose

      1. Hi Kailah,
        I have tried so many over the years. Now, I'm on zonisamide and phenobarbital. I'm currently getting weaned off of phenobarbital because I can't have children with phenobarbital and it causes my bones to decay. So, my doctors and I have come up with a plan to gradually take me off of it.
        Zonisamide causes sadness. Sometimes, I feel sad and experience memory loss, and confusion. My dosage of zonisamide was recently increased and that's when all of this started. I had to reach out to my doctor because this isn't normal for me. She's decreasing the zonisamide because these are new side effects.
        I've learned to pay attention to my body and what works for me.

        Derra Howard
        Epilepsy Team Member

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