caret icon Back to all discussions

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side effects. If you currently take AEDs what side effects have you experienced?

  1. When I first started epilim sodium valporate I went off food the smell made me want to puke that went on for a month then I went back to normal but then I put on weight about 4 stone which wasn't too bad as I was quite skinny for my size so I wasn't angry but then I stopped working out and got a bit bigger then I would of liked managed to find a diet that worked for me and that was trying loads. Now I'm being told after having a seizure (my fault I wasn't taking my meds properly) there saying my meds can cause child defects at birth for men so I'm trying to find anymore information. Would appreciate it if anyone had some info already 😀

    1. I found this article about sodium valproate and side effects for men. I hope this is helpful for you: https://epilepsysociety.org.uk/about-epilepsy/sodium-valproate. Jill (Team Member)

  2. Confusion, memory loss, concetration

    1. Forgetfulness (as in why did I come to this room? I know I wanted something)

      1. Keppra, made me angry and I just wanted to fight at a drop of a hat. Then they switched me off of it and put me on Zonizamide and I haven't had any more seizures. I had my first seizure at age 60 and was in the hospital for a month without any insurance. While on Keppra I had a seizure and drove my truck and trailer into a canal and back to the hospital plus a loss of drivers license. Zonizamide has been my answer to solve my Gan Mal.

        1. I am so glad you were able to switch off of Keppra, that sounds incredibly scary! I am happy you have medication that is helping you. Jill (Team Member)

      Please read our rules before posting.