How has epilepsy impacted your mental health?
May is Mental Health Awareness Month. And we know that one of epilepsy’s most common complications is issues with mental health.
💜 Tell us:
🧠 How has epilepsy impacted your mental health?
I had a tonic clonic a week ago, two in two months, mild compared to some folk. I have the most horrible auras, It feels like I'm been sucked into a void where I experience intense isolation and fear.
Those few moments of utter desolation and loneliness I experience before losing consciousness just breaks me, there's just nothing and no one there. I then come to in a very confused, agitated and sometimes violent manner as I fail to recognize my surroundings or loved ones around me.
I carry a deep sadness and have frequent flash backs at least a few weeks after. This last seizure wasn't as violent as the others apparently but it did leave a deep emotional scar. I'm now going to get laid off from work as I drive and use machinery, I must be seizure free for 2 years to drive. So depressed, the docs increased my dosage, we'll see how it goes. Must keep my head up, I need to beat this.
Thank you for being so transparent and authentic in sharing your experience and how it impacts you. I can't imagine how scary and frustrating dealing with that is. I'm glad you are here. Feel free to continue to share and vent here any time you need it. Gentle hugs, Corene (team member)
Have a hard time with remembering things sometimes. Can get mad easily when someone says something to me, that I miss understand. Can I have a hard time going to sleep at night, get tired, and arugmentive.
I so know what you say. I have a Dr that understood he switched my medication and over time they’ve changed the way I respond. I’m not angry I was so easily pissed off nobody wanted to be around me. And the sleep aids are sometimes ok. Evidently I snore badly and no good sleep
Because my seizures are medically under control and have been for da long while, my family esp my husband doesn’t seem to think my epilepsy is a big deal. It’s frustrating b/c I do have absence seizures still regularly, but my tonic colonic or grand mal ones have been subsided thanks to my medication. I just wish he took this ant some of my other health problems into account or at least acknowledged that he sees the problems they gave caused and cont. to do so.
Sadly this is me….
I had a bad week with my epilepsy and took a few seizures
