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Read conversations, start a discussion, and connect with others about epilepsy.

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always...

Age 5 epilepsy - carbamazepine not working?

Hi , just after some experiences / advice on what to expect. My daughter who’s 5 has had epilepsy since she was...

Can Lithium medication cause seizures

I was put on 1000mg Lithium medication for Bipolar Affective Disorder and I had a tonic clinic seizure on my way to...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny...

6-Year-Old Possibly Has Panayiotopoulos Syndrome – Neurologist Suggested Keppra, Unsure Whether to Start

Hi everyone, I’m looking for advice and shared experiences from parents or clinicians. I have a 6-year-old son who recently had a...

How has Epilepsy impacted you?

Has anyone ever thought life was over? Epilepsy isnt who you are, but it still impacts us everyday....

How are you doing, really?

It's okay to be "fine," but it also okay to be having a hard day, not feeling well, or having an amazing...

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread...

Hobbies

Have you had to change any of your hobbies since being diagnosed with epilepsy? Which ones? Do you have a new hobby...

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