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Read conversations, start a discussion, and connect with others about epilepsy.

feeling of iv contras and dizziness before blacking out

Hello, I am just wondering if anyone else has had symptoms like this? I also get really sweaty and my hands and feet lock up. Also if you know what...

Coping

Two years ago I started having seizures and was diagnosed with Epilepsy at the age of 45. Since then I have lost my career, my independence, a lot of my...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...

Equal Opportunity Policy is nonsense

I had a seizure in someone's house when assessing them for being a prospective Adopter. I had given them the information about what to do if I had a seizure...

Epilepsy and Menstruation

Ladies, I’ve been living epilepsy for 16 years and I’ve learned we are prone to seizures near or during our monthly cycles. The estrogen gets dumped in our blood and...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Burdens of having epilepsy

I have been diagnosed with partial complex seizure disorder. The challenges, I have faced is my law enforcement career. I had been a police officer for 35 years. Since was...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Looking for exchange. My strange relation to music and sound.

I got a single attack when I was 13/14 around. When I was 33, in 2021, I started to get tonic-clonic seizure and absence. Been in treatment for about 3...

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