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Coping

Two years ago I started having seizures and was diagnosed with Epilepsy at the age of 45. Since then I have lost my career, my independence, a lot of my friends and sometimes my self worth. I have learned that most of my "friends" just say the words "If you need anything or a ride let me know." just like saying the words and not following through. I am not sure why God gave me this disease, somedays I rage with anger at him, because I don't know if I am strong enough to persevere. But we are WARRIORS, and we are strong enough. God has a plan for us all. We have to power through the storm no matter how powerful. It is hard, I shouted through angry tears today as we are going for broke as I am no longer working. I have to remember, I am not weak and I will be a warrior as all of us are on this platform. As I read through everyones stories I see so much strength in all of you, just remember to keep enduring the storm, your light may help pave the way for another who is in a dark place today.

  1. Graddygal,
    I hope I have the name correct!
    I can well understand how difficult it must be for you getting seizures aged 45 when I have only had 4 out of 76 yrs free of epilepsy.
    You will learn to cope and think of those who are worse off. Also, today, compared to when I was 45 yrs of age there has been a lot of change with the Medical profession and many more AEDs and technology has increased to help decipher what is causing one to have seizures.
    There were no scans when I started only lumper punctures that took 24 hours to recover from and not even a handful of AEDs etc.
    I know it is difficult but you will push through as you have shown by thinking of coming on this website

    1. HI Dani,

      Thanks for the reply. I'm glad to see I am not the only newby here and I welcome your experience with dealing with these challenges. I hoope to find my people soon, if not, I have the people within my own four walls, they have been a wonderful support system.

      1. I am so sorry to hear this. Like you said God has a plan. The unpredictability at some point will give you the ability to do the cliché thing figure it out. Somehow, you will.


        Physically, you might be more dependent on other people. Hopefully overtime, you can mentally become an independent thinker, straying away from societies belief of self-worth.

        The type of Self-worth by society is defined by career status and number of friends. I hope you find what works for you. Differentiating between personal belief versus societal expectations.


        You go at your own pace. No one can set a milestone for you. Hopefully you can forget the ones by society overtime.


        Takes a lot of time. A lot of work. I was certainly never in this situation. Mine was diagnosed at a younger age. Based on a rare eye condition.



        Some people like to say the universe is challenging you not to bring you down, but to build you up.


        Sorry for the long winded answer. I’m also new to this site. You take care. I hope you find your plan, and your people. You’ll figure out who your real friends are too. Never go at someone else’s pace of consistency. It’s you who gets to decide how fast or slow you want to handle this.

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