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Read conversations, start a discussion, and connect with others about epilepsy.

Changing medication

Hi I have recently changed medication from tegretol to lamotrigine. I have been on tegretol for 20 years. I have been fine...

Coming out of a tonic clonic seizure

Good morning- I’ve been thinking about the postictal state we experience after a seizure. I remember my first seizure being extremely terrifying...

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy...

De ja vu spells with epilepsy

Hi I was diagnosed with epilepsy in 2022 ive had a few sezuires but my main problems is de ja vu spells...

Epilim sodium Valporate and pregnancy

Hi I recently had a epileptic fit and ended up shattering my shoulder and having surgery carried out. When I was in...

Could it be a 'small' seizure?

Hiya, I hope this doesn't sound too silly! I was diagnosed with epilepsy 12 years ago - i only have tonic clonic...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Summer with Epilepsy

Which aspect of summer most impacts your epilepsy management?...

How has epilepsy impacted your mental health?

May is Mental Health Awareness Month. And we know that one of epilepsy’s most common complications is issues with mental health. 💜...

EEG In hospital for one week

Has anyone tried EEG in hospital, For a week to locate exactly where your seizures Are located, and what medicines to take...

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