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Read conversations, start a discussion, and connect with others about epilepsy.

Neurologist

I have this neurologist and she is rubbish 5 years ago she overdose me with topimate to the point where I had 5 seizures in a row. I then found...

Fear after a seizure

I had a seizure and when I got into the house I felt this fear that something has happend like someone murdered someone or someone is in this house. I...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

Seizure with convulsions but conscience?

Hello, I’m a 30 year old female with a 15 year history with epilepsy. I’ve had many different types of seizures over the years. Recently, the seizure symptoms I’ve had...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

Age 5 epilepsy - carbamazepine not working?

Hi , just after some experiences / advice on what to expect. My daughter who’s 5 has had epilepsy since she was 3. Started with focal seizures during the night...

Hello! My Name is Amy

At seventeen years old, I got first grand mal seizure, but I worked through the seizures not knowing what was going on until one of the coworkers saw my seizures...

Can Lithium medication cause seizures

I was put on 1000mg Lithium medication for Bipolar Affective Disorder and I had a tonic clinic seizure on my way to visit my Aunt’s. I bit my lip, had...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have a seizure, I have nocturnal Epilepsy and have...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...

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