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Read conversations, start a discussion, and connect with others about epilepsy.

Screen Time and Epilepsy

Have you noticed that screen time impacts your epilepsy? Is it a seizure trigger for you? Talk about your experiences here!...

Share Your Experiences

What is your experience with hallucinations and/or auras? Share your experience and chat with other members of the community here....

Coming out of a tonic clonic seizure

Good morning- I’ve been thinking about the postictal state we experience after a seizure. I remember my first seizure being extremely terrifying because I “came to” with paramedics and at...

Postictal timeline

How long do some people go through recovering from a seizure? It takes me approximately two weeks to get back to myself....

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

VENT: How are you doing? - Really.

Life with a chronic condition, like epilepsy, has its challenges and frustrations - that is no secret. Sometimes it is helpful to talk about those frustrations or upsetting times and...

Absence Seizures

My recently diagnosed 13 year old suffers from a lot of absence seizures particularly when he's stressed. Some of these absence seizures appear to last 10-15 minutes or longer. I...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

The best smart watch to alert a carer to a tonic clonic seizure

My 13 year old boy was recently diagnosed with Juvenile Myclonic Epilepsy has a tonic clonic seizure every few months and lots of long absence seizures daily. He's at a...

Has anyone ever tried deep brain stimulation to treat their epilepsy?

How did it go and has it improved your life?...

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