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Read conversations, start a discussion, and connect with others about epilepsy.

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

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Don't give up

I was 13 when I was diagnosed with epilepsy I was having petit mal seizures (absence seizures) once per day and grand mal seizures (tonic-clonic seizures) 3 to 4 times...

How I've Lived With Epilepsy All My Life

I had my first seizure at 5 days old. They used forceps to pull me out of my mother. The scare tissue on my brain caused me to have seizures...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's really messed up logic- especially when it's something...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features like seizure tracking, alerts, or any other functionalities...

EPILEPSY BRAIN

I never knew epilepsy meant anything besides someone who shook with seizures… never knew of diff type of seizures never heard of memory loss…. Boy oh boy a year and...

Juvenile Myoclonic Epilepsy

Hi my daughter was diagnosed with JME. She had about one or two grand mal seizures a year. This year she has had a spike been on Levetiracetam 1500 twice...

How has epilepsy impacted your mental health?

May is Mental Health Awareness Month. And we know that one of epilepsy’s most common complications is issues with mental health. 💜 Tell us: 🧠 How has epilepsy impacted your...

Switching Medication From Epilim to Keppra?

Has anyone else with JME suffered unexplained, intense anxiety and increased myoclonus when switching from Epilim (Sodium Valproate) to Keppra (Levetiracetam)? Seizures well controlled for 15 years+ on Epilim. Switched...

Work and epilepsy

My partner had a seizure and had a 6 month driving ban. It is not confirmed epilepsy as he is having tests. His work have called tests over 3 days...

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