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Read conversations, start a discussion, and connect with others about epilepsy.

Burdens of having epilepsy

I have been diagnosed with partial complex seizure disorder. The challenges, I have faced is my law enforcement career. I had been a police officer for 35 years. Since was...

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

Looking for exchange. My strange relation to music and sound.

I got a single attack when I was 13/14 around. When I was 33, in 2021, I started to get tonic-clonic seizure and absence. Been in treatment for about 3...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Breakthrough Siezures while taking Trileptal

A brief seizure history. I started having seizures in 2005. I then had one 4 months later. A neurologist prescribed depakote which was not effective. I had about 4 grand...

TBI Recovery Time

Hello Everyone, My mother has had a seizure 3 weeks ago out of the blue one morning. I immediately called 911 and she was administered several anti seizure medications along...

Eyelid fluttering

Hi everyone! I was diagnosed with Juvenile Myoclonic Epilepsy 10 years ago and have been on 200mg of Lamictal twice a day since then. Last year, I started having really...

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