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Read conversations, start a discussion, and connect with others about epilepsy.

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...

Equal Opportunity Policy is nonsense

I had a seizure in someone's house when assessing them for being a prospective Adopter. I had given them the information about what to do if I had a seizure...

Types of Epilepsy

What type of epilepsy were you diagnosed with?...

Epilepsy and Menstruation

Ladies, I’ve been living epilepsy for 16 years and I’ve learned we are prone to seizures near or during our monthly cycles. The estrogen gets dumped in our blood and...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Burdens of having epilepsy

I have been diagnosed with partial complex seizure disorder. The challenges, I have faced is my law enforcement career. I had been a police officer for 35 years. Since was...

Epilepsy in the Media

Where do you feel the media excels at representing epilepsy and where does it fall short? Feel free to use this thread to vent about something you saw or heard...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

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