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Read conversations, start a discussion, and connect with others about epilepsy.

Possible having my husband as a care taker.Or I might have to go into Assisted Living. Does anyone out there ever had the experience of Assisted living or having a...

I have had my epilepsy since I was born. My mother found out at the age of a year and half years old. She took great of me till I...

EPILEPSY BRAIN

I never knew epilepsy meant anything besides someone who shook with seizures… never knew of diff type of seizures never heard of memory loss…. Boy oh boy a year and...

Anti-seizure drugs (AEDs) and epilepsy

It is said that Anti-seizure or antiepileptic drugs (AEDs) can effectively prevent seizures in about 7 out of 10 people with epilepsy. However, they can also create long-term, serious side...

Ice

I was looking into side effects of one of my meds and found that gallstones were going to be a likely effect. My GP looked into it and agreed with...

Deja vu

Had a defunct episode yesterday which feels so foreign, scary, and surreal. Any updates or feedbacks?...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

Nocturnal seizures

Hi I have nocturnal seizures and have a hard time with remembering conversations and sometimes I feel like people are trying take advantage of me....

Long term side effects of Keppra

I, a 22 yr old female have been taking Levetiracetam (generic Keppra) 500mg -2 times daily for around 6 years. Before that I was on Phenytoin (Dilantin) 100mg -3 times...

Medication and Treatment Preferences

What type of treatment do you primarily use to manage your epilepsy? Options: Medication Ketogenic diet Vagus nerve stimulation (VNS) CBD/Medical cannabis Surgery Other Have you experienced significant side effects...

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