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Read conversations, start a discussion, and connect with others about epilepsy.

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Diagnosis

We understand that living with epilepsy can be difficult, so we'd like to create a safe space where you can share what's the hardest about managing epilepsy. Tell us, when...

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Living with epilepsy

Living with epilepsy can be challenging. How do you deal with epilepsy? Tell us about your experience....

People who have epilepsy AND have an abnormal EEG, did the AED meds make your EEG normal?

People who have been diagnosed with epilepsy and whose EEG shows SWD discharges, did those discharges go away when you were put on meds? Was your EEG clean? And did...

My First Seizure Story

First time I experienced a seizure I was on back of motorcycle when I fell off of it. I went to the hospital and was placed on life support. This...

Does anyone know when they are going to have a seizure?

Can Migraines take place of seizures

Has anyone had migraines take the place of seizures For a period of time with them being diagnose with epilepsy...

Rare Epilepsies Series: Doose Syndrome (Myoclonic Atonic Epilepsy)

Epilepsy is a complex disorder. Our aim is to highlight rare forms of epilepsy in this series. Share with us: Has your child experienced Doose syndrome (myoclonic atonic epilepsy)?...

Diagnosed in 2006

I was held captive by a man I went to church with for 5 days and have had seizures ever since a TBI I had Gran maul seizures since this...

Epilepsy Labels: Is It a Disease, Disorder, or Condition?

We understand that names and labels matter! Despite their intent to inform, labels sometimes feel stigmatizing. As part of our effort to support people living with epilepsy and those who...

Survey Closed! Will you take our In America survey and help others understand the true impact of epilepsy?

This Survey Is Now Closed. Thank you so much for your interest and participation! Epilepsy is the fourth most common brain disorder in the United States after Alzheimer’s disease, migraine...

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