The Epilepsy Awareness Month Giveaway

I'm Emily and I'm a new diagnosed focal epileptic. Unfortunately, I was misdiagnosed for about two years. I don't let epilepsy stand in my was because I didn't stop until I knew exactly what was wrong with me. I am now a patient at Mayo clinic getting the best care possible for me. Unfortunately, medication doesn't work for me so brain surgery is my next step. I don't stop being a mother, a Jesus follower or a wife. This diagnosis doesn't define who I am.

Hi, I'm Miyahs mom. She is 12 years old and was diagnosed with generalized tonic clinic seizures and myoclonic absence seizures 3 years ago. Blinking lights and those school lights are one of the main causes for her seizures. She cant watch tv in the dark and cant travel when its really bright out or when its dark out. She started having them out of no where with no reasons why. This has been a very long and scary path for us with many doctors appointment and medication changes. She has been having a hard time in school with kids making fun of her and her not fitting in with the "popular kids", but we are holding on strong hoping for answer and a medication that will stop the seizures. Why don't we let epilepsy stand in your way? Well because we are strong, we have faith, and we have each other and family!!! She would love to have a journal to write her emotions on after having a seizure this would help her and also help doctors know how she was feeling after each seizure. Thank you for doing this 💜 bless your hearts!!!

I am an epilepsy warrior. I have had epilepsy since I was 18 months old. I have a type of epilepsy called Tuberous Sclerosis meaning I have tumors/tubers on the left side of my brain. I recently found out that the tubers are spreading to my kidneys and have been there since 2011 (which i was never informed of in 2011) and have gotten larger. I don't let epilepsy hold me back because I have children and I have to make sure that they have everything they need for school, clothes, a place to live, and food to eat. I work a full time job to ensure they are taken care of. I am almost 36 years old and am still fighting epilepsy. It hasn't been easy but I deal with it everyday. A lot of times when I tell people I have epilepsy, I see a look of pity on their faces and they seem to wonder how I can work with epilepsy. Almost everyone I talk to expects me to have seizures that make me "fall to the ground and shake," since grand mals are the only type people seem to know anything about. So I educate people on the many different types of seizures, including the type I currently have, so that they realize that epilepsy isn't just grand mal seizures. Epilepsy is not an easy disorder to live with but I am fighting through to ensure my children and I have the best life I can possibly provide for us. It's not easy to live with epilepsy and all the tests, medications, and seizures we deal with everyday but I will never let it hold me back from being successful at work or taking care of my children. #Epilepsyawareness

I am an Epilepsy Mom..My son was diagnosed at age 3 with Epileptic Spasms. He was having hundreds of seizures a day. We tried every medication under the sun and went through 4 Neurologist before we found the Neurologist that would save our sons life. He had a partial Hemispherectomy when he was 7, removing his right Temporal, Parietal and occipital Lobes. Lost his left side peripheral vision in both eyes and left side weakness. He had to learn to walk and feed himself all over again. The Brain Biopsy was diagnosed as Cortical Dysplasia. He was seizure free for 8 months then seizures came back even after taking 4 seizure medications. He had another Brain Surgery at 8 years old to remove a portion of his Right Motor Cortex and now has sever left side weakness in his left arm and hand. He learned to walk again but with weakness and now AFO’s for stability…age 13 years old he Had yet another Brain surgery to have a Corpus Callosum cut to separate the remaining right side to the left side because of drop seizures that started at age 11. He is now 16 and we have found out his left side of the brain(“Good side”) is now showing spiking. We continue to fight the fight of this Monster and we live every day as normal as we can. He plays Baseball and Bowls with the Local Miracle League and he loves to watch his Older brother play Hockey. We continue moving forward and loving our sunsets and sunrises every single day.☺️