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My grandsons epilepsy journey

Hi my name is Jennifer. I am raising my 1 yr old grandson Erik. Erik has been diagnosed with infantile spasms and epilepsy. Erik is on 2 types of medications he takes twice daily for his seizures. Praise God he hasn't had one in 5 weeks. His seizures can b pretty scary but Erik hasn't let his seizures slow his progress down. Erik was born blind and with hydrocephalus and at 1 day old he required brain surgery to have his BP shunt placed. Erik is n physical speech and occupational therapy 4 times a week and is doing amazing. He never gives up!
My sweet grandson Erik

  1. thank you so much for sharing with the community. Please know, we are here for you and understand how difficult navigate through a journey like epilepsy can be - especially for caregivers. I found these articles that you may find helpful:
    https://epilepsydisease.com/caregiver-burnout
    https://epilepsydisease.com/living/helpful-tips-caregivers
    https://epilepsydisease.com/living/difficult-caregiver-decisions
    Wishing you both the very best! -Kailah (Epilepsy Team Member) 💜

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