My daughter
Back in 2015 my daughter give me a big scare when I got up during the night to use the bathroom and to back to her room at the age of 5 she had fallen off her bed and was shaking for 30 mins I was so scared cause I didn’t know what to do right way but call 911 then woke up my mom who was a nurse till the ETM got there it has been a hard 5 years for us and counting she’s been a strong kid she will be 11 on Dec 19.
Hi Melissa!
I could only imagine that was scary for you. I know when I've had seizures like that, my mother would not want to leave my side at all. How is your daughter coping with her epilepsy? How are you all doing with it? Just let her know that she can do anything! And make sure she and her friends know seizure safety! She will definitely be okay!
Any questions- message me. My epilepsy started at 9. It took me until my early 20s to really understand what epilepsy meant to me.
Derra Howard
Patient Leader
