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Neurologist

I have this neurologist and she is rubbish 5 years ago she overdose me with topimate to the point where I had 5 seizures in a row.

I then found out about this drug called perampanal which I had to push for saying " I want a baby" she prescribed it me and I haven't had any seizures.

I'm now 31 and pregnant I haven't seen my neologist and a epilepsy nurse was meant to be in touch.

I had 1 seizure and it took me awhile to get in touch and it was by phonecall I was 37 weeks by now she said "we should put my lamagine up" I said "no I was feeling great and I know it was just stress."

Not just that she didn't know what my lamagine levels where so they could of been to high when she suggested this. My lamagine levels came back fine so she would of overdose me again.

I'm having my pregnancy at a different hospital as this hospital has been rubbish. They discharged me from all of there care when I was 30 weeks pregnant and I didn't know about it. I'm now back with them as they made a mistake.

This pregnancy was an accident I was still on topirmate at the time but for ages I had told them "I want a baby me and my partner want to try I'm 31 and my partner is 39 we aren't getting any younger.'

They brought me in to tell me about having contraception why would I use contraception if I wanted to get pregnant. I said "I was using the barrier method" but they where really trying to push me to have the coil or the pill.

When I did tell my neurologist I was pregnant they had to take me off my topirmate fast within the first 3 months

Noone told me toporate is an antidepressants or that I would get withdrawal symptoms.

It really affected my relationship with my family and partner as I was angry all the time or sad. I pay for a councilor so that helped but they didn't offer a councilor or what the side effects I would have.

It really upset me and being pregnant is meant to be a special, happy time but this has really effect me I'm only starting to enjoy my pregnancy in my 3rd trimester.

I was lucky as I had a lot of support around me and my family and partner was very understanding of it.

But someone could of been alone and not have a very supportive family or partner and it could of destroyed everything.

Has anyone else had a bad experience from a neurologist?

  1. Hi you have been through so much. My heart goes out to you and all that you are going through with this pregnancy. I am glad to hear you are starting to be able to enjoy it now. You are so right with saying that having support makes all the difference. I am glad you are not going through this alone. I wanted to send over this article about how our advocates go about finding a doctor and their experience with this: https://epilepsydisease.com/living/care-team. Please keep us posted with how you are feeling. Jill (Team Member)

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