Tameka Simmons

Epilepsy Disease Community Advocate tamekaTameka Simmons is a caregiver, patient advocate, and founder of the nonprofit Through Evely’s Eyes, an organization dedicated to supporting families raising children with rare diseases and complex medical needs. Her advocacy journey was shaped by her daughter Evely’s medical experiences, which led her to become a voice for families navigating similar paths.

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Through storytelling, community building, and patient leadership, Tameka works to amplify caregiver voices and promote the value of lived experience in healthcare spaces. She is passionate about helping families feel seen, supported, and empowered throughout their journeys.

Click here to read all of Tameka's articles on EpilepsyDisease.com.