Allany Muniz

Epilepsy Disease Community Advocate Allany MunizHey, my name is Allany Muniz, a woman who happens to have epilepsy. In my 14 going on 15 years of having epilepsy, I have experienced PTSD, healing, mental health issues, paranoia, finding my confidence/voice, and isolation.

I got diagnosed in August of 2011. That particular day was typical, except for feeling excited to start my freshman year. I was ready to get rid of the nightmares I endured in middle school and saw high school as my fresh start. Honestly, I can't even tell you what he [my doctor] said; all I heard was seizures and epilepsy. A few days later, I had a seizure, which confirmed my epilepsy diagnosis. Of course, in my life, I've been the center of embarrassment and humiliation, so when I had 3 seizures at school, I became known as the "seizure girl."

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The idea of Diary of an Epileptic started in 2019 when I would have these creative... self-talk moments (now known as vivid visions/dreams). In November 2020, I fractured my ankle and thought, “Might as well, since I had nothing else to do.” It was weird at first because I forgot I was still loopy from the anesthesia, but it felt... right… like I was on the right path.

Throughout the years, I received opportunities to speak about my story and spread awareness. My start of spreading awareness began in early 2021 in a Shaken but not Shattered podcast, and later was interviewed for a few news articles and blogs. I have spoken to The Alestle Live, The Collinsville Daily News, Same Wave Together blog, and recently appeared on The Chronic Truth Podcast.

Click here to read all of Allany's articles on EpilepsyDisease.com.