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Read conversations, start a discussion, and connect with others about epilepsy.

restless leg syndrome

Along with Petit Mal, I have R.L.S. Keppra now controls seizures but nothing other than opiates seem to calm my legs. Requip does nothing and Gabapentin puts me to sleep...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...

Epilepsy Journey

I was diagnosed with epilepsy when I was 15 years in 1999. I have had a mixture of highs and lows these last 23+ years of my epilepsy journey. One...

She has Sparks in her Brain and Love in her Heart

I was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...

Starting a midday dose

I just started to take 300 mg of oxcarbazpine and 25 mg BRIVIACT in the middle of the day. I was just wondering if any one has done this, I...

Focal seizures

I'm really struggling 10 years ago I had a bout of seizures after a few years of stress. I was diagnosed with temporal lobe epilepsy They went away, with no...

Carbamazepine Dosage for Epilepsy Treatment

Hello everyone, I'm reaching out for some guidance regarding the dosage of carbamazepine for my son's epilepsy treatment. He was diagnosed with epilepsy when he was 13 years old after...

Ant- Epileptic Medication and Sudden Availability

In recent times, and I mean two days ago, I discovered that one mu prescription was in low stock due to pending orders within the manufacturer. This said, it would...

Living with seizures

I've had seizures since I was 5 days old. When I was 28 I had brain surgery. I was seizure free and able to wein off my medicine. When I...

PTSD And living with Epilepsy

Hi, I was diagnosed earlier last year with epilepsy after having my second seizure. I had my first in 2019 but wasn't treated until I had my second. Annoyingly the...

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