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Read conversations, start a discussion, and connect with others about epilepsy.

Active 8 days ago

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

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No car

Ugh I had the freedom of coming and going, all of a sudden....poof....no driving. My family made me return the plates of my car. It was a sad day. No...

Seizure with convulsions but conscience?

Hello, I’m a 30 year old female with a 15 year history with epilepsy. I’ve had many different types of seizures over the years. Recently, the seizure symptoms I’ve had...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

EEG In hospital for one week

Has anyone tried EEG in hospital, For a week to locate exactly where your seizures Are located, and what medicines to take, with less side effects?...

Age 5 epilepsy - carbamazepine not working?

Hi , just after some experiences / advice on what to expect. My daughter who’s 5 has had epilepsy since she was 3. Started with focal seizures during the night...

Hello! My Name is Amy

At seventeen years old, I got first grand mal seizure, but I worked through the seizures not knowing what was going on until one of the coworkers saw my seizures...

Can Lithium medication cause seizures

I was put on 1000mg Lithium medication for Bipolar Affective Disorder and I had a tonic clinic seizure on my way to visit my Aunt’s. I bit my lip, had...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have a seizure, I have nocturnal Epilepsy and have...

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