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Read conversations, start a discussion, and connect with others about epilepsy.

Screen Time and Epilepsy

Have you noticed that screen time impacts your epilepsy? Is it a seizure trigger for you? Talk about your experiences here!...

Absence Seizures

My recently diagnosed 13 year old suffers from a lot of absence seizures particularly when he's stressed. Some of these absence seizures appear to last 10-15 minutes or longer. I...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

The best smart watch to alert a carer to a tonic clonic seizure

My 13 year old boy was recently diagnosed with Juvenile Myclonic Epilepsy has a tonic clonic seizure every few months and lots of long absence seizures daily. He's at a...

Has anyone ever tried deep brain stimulation to treat their epilepsy?

How did it go and has it improved your life?...

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

How do I cope with temporal seizures?

Hi, I am f 24 and I am new to epilepsy. This will be a long post so please bare with me. :) 10 months ago I started having some...

God has a sense of humor

Recently I have been diagnosed with Epilepsy, when I say recently, I mean 3 years ago. Let me just put this out there, I am a terrible patient and I...

My son having bad side effects on his meds.

I have a 26 year old son who is on to 250 mg Xcopri, 100 mg Vimpat, and 10 mg Lexapro. The side effects are very tired, memory loss, blurred...

Has anyone had angry outbursts related to taking Keppra?

I’ve been on Keppra for seizures the past 3 years and have noticed an increase in angry outbursts and outrage that’s unlike me. I also find myself getting sad and...

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