Seizure care as someone with epilepsy
As someone with epilepsy, how do you want to be cared for when you have a seizure?
I would like to have someone that I could all o be with me after my seizures, that has the time & knowledge about seizures. Because I feel like an burden to my neighbor who has enough troubles of his own to handle. I can't stand seeing how much it affects my son, by constantly worrying about me. I am 50 yrs old and 1st time grandmother-my Granddaughter is 5months old. I hope that I can make it long enough for her to have actual memories of me & positive memories. She is my motivation. I never want her to see me suffering. I have caused enough stress already to my daughter, my son & my best friend who is also my neighbor. I'm tired of being so sick & exhausted so often.
Honestly l, want my mom. No doctor. No strangers. Just wanna cry, as I crawl to the bathroom to clean myself up and ask her ma, did it happen again. Why cant I be normal.
Sick at 14. Diagnosed 3 days before my 18th birthday. Thank you Dr. Tzorfas!!! Seizure free 2 years and 3 months!! First time ever.!!Hi - when I have a seizure I feel as if I had been hit by a Mac truck! So I guess I want someone there to comfort me when I wake up, as usually I don’t know where I am etc, and to stay with me till I have my bearings which could be a couple of days, we all suffer differently but it doesn’t make the experience any easier for us, or for the family members who witness it and need to care for us afterwards…💖💖😢😢
My brother has suffered with epilepsy since his diagnosis 10 years ago. When he was first diagnosed he seemed ok with hardly any seizures, but gradually the seizures increased and now he can hardly relax himself for 10 minutes because he is having continuous seizures ,
He is organised like anyone else and still likes to have his meals on time at meal time
During his seizures he repeats words over and over again that relate to how he has previously spent his time, the seizures usually happen anytime during the day or night, and he hasn't really slept for the last 3 days.
Please advise if could be possible 🙏 God bless you always 😇
