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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?

  1. Hi - when I have a seizure I feel as if I had been hit by a Mac truck! So I guess I want someone there to comfort me when I wake up, as usually I don’t know where I am etc, and to stay with me till I have my bearings which could be a couple of days, we all suffer differently but it doesn’t make the experience any easier for us, or for the family members who witness it and need to care for us afterwards…💖💖😢😢

    1. My brother has suffered with epilepsy since his diagnosis 10 years ago. When he was first diagnosed he seemed ok with hardly any seizures, but gradually the seizures increased and now he can hardly relax himself for 10 minutes because he is having continuous seizures ,

      He is organised like anyone else and still likes to have his meals on time at meal time

      During his seizures he repeats words over and over again that relate to how he has previously spent his time, the seizures usually happen anytime during the day or night, and he hasn't really slept for the last 3 days.

      Please advise if could be possible 🙏 God bless you always 😇

      1. I have galactic epilepsy and they are laughing seizures. But, since I have had 3 brain surgeries. My seizures have changed and gotten worse. My husband, makes sure that I'm doing well and that ai am in bed. Because, I need to get a lot of sleep In order to keep and calm down my seizures. When, I fail asleep, I sleep for quite awhile and then I wake up and talk to my husband and let him know how I'm feeling

        1. I just had 2 the other day I think you want to be cared for with the most loving way and know people are there for you. It helps to know that you rest and take care of yourself while children are taken care of. I kinda miss having my mom around when I was younger because she made sure everything went smoothly.

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