Seizure care as someone with epilepsy
As someone with epilepsy, how do you want to be cared for when you have a seizure?
It depends on the type of seizure, grand mal or petit mal.
For a grand mal seizure, which I thankfully haven't had in six years due to medication, I'm generally very tired, and content to be babied by my husband and just rest too give my brain time to recover.
For a petit mal seizure, which I've been having an increased amount over the last 6 months, 5+ times a day, and working on a treatment plan with my neurologist, I usually just take a brief rest and continue on, as life moves on. Husband and older kids(16 and 12) have been on the job with handling the little guy(5), meals and other household tasks I can't find the energy for.
I am glad you are working on a treatment plan with your doctor, I can't even imagine how difficult this is for you. Has you doctor been able to explain or understand why you might be seeing this increase over the last 6 months? I am so glad to hear you have support at home so that you can rest, even if it is brief. Please keep us posted on what your doctor says. Jill (Team Member)
I would like to have someone that I could all o be with me after my seizures, that has the time & knowledge about seizures. Because I feel like an burden to my neighbor who has enough troubles of his own to handle. I can't stand seeing how much it affects my son, by constantly worrying about me. I am 50 yrs old and 1st time grandmother-my Granddaughter is 5months old. I hope that I can make it long enough for her to have actual memories of me & positive memories. She is my motivation. I never want her to see me suffering. I have caused enough stress already to my daughter, my son & my best friend who is also my neighbor. I'm tired of being so sick & exhausted so often.
Honestly l, want my mom. No doctor. No strangers. Just wanna cry, as I crawl to the bathroom to clean myself up and ask her ma, did it happen again. Why cant I be normal.
Sick at 14. Diagnosed 3 days before my 18th birthday. Thank you Dr. Tzorfas!!! Seizure free 2 years and 3 months!! First time ever.!!
I am thankful your doctor was able to find an effective treatment plan for you. Wishing you many more seizure free days ahead! All my best, Julie (team member)
Hi - when I have a seizure I feel as if I had been hit by a Mac truck! So I guess I want someone there to comfort me when I wake up, as usually I don’t know where I am etc, and to stay with me till I have my bearings which could be a couple of days, we all suffer differently but it doesn’t make the experience any easier for us, or for the family members who witness it and need to care for us afterwards…💖💖😢😢
