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Read conversations, start a discussion, and connect with others about epilepsy.

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Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

Featured

Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

Epilepsy Pamphlet Project Questions

Hi!! My name is Tiera My high school has a required senior project that all seniors have to do in order to graduate. We are allowed to choose our project...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

Keppra Rage

I am 57 years and on a strong dose of Keppra plus tegretol and clobazm. I have dealt with several major life events over the last 4 years. My seizures...

Partial complex seizures and driving

I am 30 years old I've been living with absence and partial complex seizures for 20 of those years. I think they are under control with lamictal however I don't...

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