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Read conversations, start a discussion, and connect with others about epilepsy.

First time seizure

Hi there So i’m a first year college student and I had my first grand mal seizure a few days ago. It was pretty bad, I was shaking really violently...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

waking up and having a seizure

god dam. waking up and going straight in to a seizure completely sucks. I have been feeling rough (actually, I feel roughter than usual, I'm even surprised) hope my day...

Stress and anxiety triggering seizures

Stress can be hard to avoid, but our bodies can feel its impact. For some, stress or anxiety can also be a cause of seizures. And then more stress and...

Partial SZ with bradycardia

Hey everyone, I have a fairly recent questionable seizure-like activity that started in 2021, and im a 28yr female. It started when I had an intense deja-vu episode while driving...

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Has Your Memory Worsen as You Got Older ? Is a Whiteboard or notebook helping ?

As we know, dealing with epilepsy has many effects that can’t be explained. Course, you can't explain it... It would be best if you remembered to do so. Dealing with...

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

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