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Read conversations, start a discussion, and connect with others about epilepsy.

De ja vu spells with epilepsy

Hi I was diagnosed with epilepsy in 2022 ive had a few sezuires but my main problems is de ja vu spells...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Diagnostic telemetry

Hi everyone, wish me luck for Monday 7th July please. I'm off to hospital for another round of telemetry, 5 days this...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a...

It's Giveaway Time!

Enter for a chance to win a Fitbit Inspire 3 Health & Fitness Tracker! Get more details about the giveaway here.

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have...

Memory and Mood

I have had epilepsy my entire life. They got much worse within the last couple of years and now I have them...

Postictal timeline

How long do some people go through recovering from a seizure? It takes me approximately two weeks to get back to myself....

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward...

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