Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about epilepsy.

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

God has a sense of humor

Recently I have been diagnosed with Epilepsy, when I say recently, I mean 3 years ago. Let me just put this out there, I am a terrible patient and I...

Loneliness isn't just a feeling

Loneliness can be • feeling unseen • feeling unheard • feeling disconnected...

Featured

Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

Featured

Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

Epilepsy Pamphlet Project Questions

Hi!! My name is Tiera My high school has a required senior project that all seniors have to do in order to graduate. We are allowed to choose our project...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Keppra Rage

I am 57 years and on a strong dose of Keppra plus tegretol and clobazm. I have dealt with several major life events over the last 4 years. My seizures...

Categories

Select a category to find topics that interest you.