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Read conversations, start a discussion, and connect with others about epilepsy.

Active today

Emotional Triggers?

Have you ever noticed a link between heightened emotions (like anger or stress) and your seizures?...

Active 2 days ago

Invisible Parts of Epilepsy

What’s the most exhausting part of living with epilepsy (or supporting someone who does) that people don’t see? Share your experience with...

Active 5 days ago

Grandson- 5 years old - Doose Syndrome

Just Diagnoised with Doose Syndrome. His parents have been with him through 85 days of testing. As a grandparents, my wife and...

Active 5 days ago

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

Active 5 days ago

Grandparents Looking for Help - Doose Syndrome

Our grandson (age 5) was just diagnosed with Doose Syndrome. His parents have been with him through 85 days of testing. As...

Active 6 days ago

Nocturnal seizures

Hi has anyone else had these and none whilst awake ?...

Active 6 days ago

Do you know what triggers your seizures?

This forum was part of our 2025 Giveaway, which is now closed. We welcome our community members to continue discussing seizure triggers...

Explaining Epilepsy to Others

Do you ever get frustrated with having to explain epilepsy to other people? What is the most commonly misunderstood piece of information...

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No car

Ugh I had the freedom of coming and going, all of a sudden....poof....no driving. My family made me return the plates of...

STD application process

Hi- I'm looking for some help. on 4/19 this year I had a major work injury, heavy box fell on my head...

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