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Read conversations, start a discussion, and connect with others about epilepsy.

Help! Anyone out there have or know someone with seizures similar

My 9 year old son started having seizures when he was around 5 (that we know of). We have had EEGs MRIs and any and all testing done. They have...

EEG

Hi, can an EEG determine if epileptic seizures are focal or generalized? See where in the brain they are triggered? Can EEG determine what type of epilepsy it is?...

Type of epilepsy

Hi I had my first seizure at the age of 14 years. Then I was standing in the balcony was very worried what happened if the result was not upto...

What's your seizure journey? In for questions

Hi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...

Frightened to leave

Only recently have I been diagnosed with epilepsy one of my triggers is periods! After 12 seizures in 3 months I’ve finally got a diagnoses but waiting on medication..I’m scared...

Split Second Blackouts

Hi, I have photosensitive juvenile myoclonic epilepsy. I have had it for 7 years and this entire time I have been struggling with split-second blackouts. They happen multiple times a...

16 year old with seizure like activity

My 16 year old daughter gets extreme nausea then about 2-3 minutes later has seizure like activity…eyes rolling back in her head, stiff legs and arms and her hands draw...

God's grace

This has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...

She has Sparks in her Brain and Love in her Heart

I was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...

Starting a midday dose

I just started to take 300 mg of oxcarbazpine and 25 mg BRIVIACT in the middle of the day. I was just wondering if any one has done this, I...

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