Help! Anyone out there have or know someone with seizures similar

My 9 year old son started having seizures when he was around 5 (that we know of). We have had EEGs MRIs and any and all testing done. They have yet to find anything wrong or any abnormal brain activity. He experiences what he calls tingling in his right arm and right leg when it happens (mostly right leg). The seizures tend to last only a second, or an hour and not really anywhere in between. He said it feels almost like a shock when it comes on but can not really describe it. He is fully aware and can answer detailed questions during it. He can walk if he absolutely has to but it causes his right leg to not function well. His right thigh will have a small spasm during it as well. It used to make him fall when he was younger, but as he has gotten older he will kind of act like he's going to fall but doesn't. Lately his right leg has been bothering him even when he is not having a seizure and his gate has been off almost all the time. Other then this issue he is very healthy, very active and athletic. He plays sports and does very well at them. He has had days where he has had upwards of 30 "quick " seizures (lasting only a second) and has had days where he has had 4 or 5 "long" seizures (lasting around an hour). An average day for him is a seizure at around 5am and another one around 5pm. 2 is the average but somedays he has 3 or 4, and some days only 1. It is a very rare occasion if he makes it 24 hours without a long seizure (once every couple of months maybe). We are trying to find someone out there with a similar case. He has tried several meds (like 7 probably) and a few seem to help but not stop them. And by help I mean instead of having seizures all day long he has a few a day. He also has had a VNS put in about a year ago and it has done nothing so far. We have no answers from our doctors even after several hospital stays, EEGs, a trip to Seattle ect. The reaction is always the same, kind of a shoulder shrug and a "we haven't seen this before" response.