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Read conversations, start a discussion, and connect with others about epilepsy.

Split Second Blackouts

Hi, I have photosensitive juvenile myoclonic epilepsy. I have had it for 7 years and this entire time I have been struggling with split-second blackouts. They happen multiple times a...

16 year old with seizure like activity

My 16 year old daughter gets extreme nausea then about 2-3 minutes later has seizure like activity…eyes rolling back in her head, stiff legs and arms and her hands draw...

God's grace

This has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...

She has Sparks in her Brain and Love in her Heart

I was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...

Starting a midday dose

I just started to take 300 mg of oxcarbazpine and 25 mg BRIVIACT in the middle of the day. I was just wondering if any one has done this, I...

Tbi and epilepsy…

Anyone have tbi and develop epilepsy after? Where you feel like you become someone else. You think you’re crazy all the time and you think you’re seizures are all in...

Do I have epilepsy or just a seizure disorder?

Hello. I've had seizures ranging from grand mal to absent for over 15 years and on medication for them. My discussion/question is, I've only ever had them within 2-3 hours...

Welcoming my 40's with epilepsy

I started all of this, out of nowhere, at the age of about 39. My first doctor told me, after a night of 7 terrible seizures, that it was all...

Will You Take Our 2023 In America Survey?

Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...

My story

I was 15 and I was healthy my whole life. Next thing I know I'm in the ambulance and they are telling me I had a seizure. It shook me...

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