A Successful Medication Change: Titrating Off Phenobarbital PausedAfter a year and five months of weaning off phenobarbital, I stopped the process. I stopped the process because I needed some normalcy again. I’m not sure if it was...Reactions0reactionsComments4 comments
My Journey to Medical Marijuana: A Search for ReliefLiving with epilepsy can be complex at time. I have been looking for the perfect medication combination for a year now. I have tried several medications, but it truly has...Reactions0reactionsComments3 comments
New Medication, But I Feel BlahIt's been a year on this journey of finding the right medication to replace phenobarbital. I won't lie. It has been challenging. I have dealt with a range of challenges...Reactions0reactionsComments1 comments
Medication and Treatment PreferencesWhat type of treatment do you primarily use to manage your epilepsy? Options: Medication Ketogenic diet Vagus nerve stimulation (VNS) CBD/Medical cannabis Surgery Other Have you experienced significant side effects...Reactions0reactionsComments1 repliesSide EffectsTreatment
Bridging the Gap: My Journey as an Epilepsy Nonprofit OwnerLife as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my resources and network together for a good cause:...Reactions0reactionsComments2 comments
Finding the Right Neurologist I wanted to see if anyone else has issues with finding the right Neurologist. I have been looking for a neurologist who has bedside manner and cares about my journey...Reactions0reactionsComments0 repliesHealthcare Team
When I Reach My Ceiling, Seizures BeginMy seizures are triggered in various ways. Like most people with epilepsy, we learn our triggers over time. I’ve learned my seizure triggers are lack of sleep, drinking, stress, and...Reactions0reactionsComments0 comments
5 Things You Should Know Before Switching Epilepsy MedicationEditor's Note: Always consult your doctor before making any changes to your medication or treatment plan. Living with epilepsy means navigating the world of medication to find what works best...Reactions0reactionsComments1 comments
Navigating Workplace Challenges: Overcoming Epilepsy StigmaIn today's diverse workplaces, I often face significant challenges due to stigma and discrimination associated with my epilepsy. Overcoming these obstacles requires a concerted effort from both individuals and organizations...Reactions0reactionsComments7 comments
Navigating a Sudden Change in Healthcare Providers: Tips for a Smooth TransitionFinding the right doctor can be a trying task. I thought I had found the right doctor. So much so, that we came up with a two-year plan to wean...Reactions0reactionsComments0 comments
Empowering the Epileptic Journey: Navigating Work and Transportation ChallengesHey fabulous souls, it's Derra Howard, your guide in the world of style and resilience. Today, let's dive into a topic that's close to my heart – navigating life with...Reactions0reactionsComments0 comments
What's your seizure journey? In for questionsHi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...Reactions0reactionsComments1 repliesDiagnosisSeizuresTypes of Epilepsy
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate dance between hope and uncertainty. Recently, I made...Reactions0reactionsComments0 comments
Understanding Epilepsy Treatment and If Surgery Is an OptionA few years ago, I went to the doctor to see if I qualified for epilepsy surgery. I stayed in the hospital over 2 weeks. I did not qualify because...Reactions0reactionsComments0 comments
Finding the Right Medication CombinationHaving side effects with any medication is inevitable unless you luck out. However, my medications really didn't start to give me any issues, per se. It was the long-term side...Reactions0reactionsComments0 comments
Empowering Law Enforcement With Seizure Safety TrainingEmbarking on a transformative journey with the Epilepsy Foundation of America and the Public Health Institute in Atlanta, my mission was clear: to enhance seizure safety awareness within law enforcement...Reactions0reactionsComments1 comments
Weaning Off Of Phenobarbital Again – The Right WayA few years ago (in 2018), I tried to get off of phenobarbital with another doctor. However, it was a frightening experience for me and my family. My doctor at...Reactions0reactionsComments0 comments
I Had A Seizure And Broke My FootI was rushing down the stairs at my apartment complex and had a seizure. Mind you all, I live on the third floor of my apartment complex. I never thought...Reactions0reactionsComments0 comments
Spreading Epilepsy Awareness in "Non-Epilepsy" SpacesFor this year's Essence Festival of the Culture, I was able to have my first vendor booth for my epilepsy nonprofit, the Saving Grace Epilepsy Foundation. The Essence Festival is...Reactions0reactionsComments0 comments
The Importance of Taking Epilepsy MedicationIt is important for me to take my epilepsy medication. If I did not take my medication, I would open the door for me to have a breakthrough seizure. When...Reactions0reactionsComments0 comments
