Epilepsy Is Quite Tricky: The Many PivotsEpilepsy is quite tricky. The other night, I woke up because I felt intense jerking in my sleep, a rare occurrence. That...reactionscomments
Where Did the Spoon in Mouth Myth During a Seizure Come From?Where did the spoon-in-mouth myth during a seizure come from? I always wondered where it came from. So I looked it up...reactions1comment
Living with Epilepsy: My Journey of ResilienceEpilepsy is more than a medical condition. It tests your limits, reshapes your priorities, and ultimately teaches resilience. You become adaptable. My...reactions15comments
A Successful Medication Change: Titrating Off Phenobarbital PausedAfter a year and five months of weaning off phenobarbital, I stopped the process. I stopped the process because I needed some...reactions4comments
My Journey to Medical Marijuana: A Search for ReliefLiving with epilepsy can be complex at time. I have been looking for the perfect medication combination for a year now. I...reactions3comments
New Medication, But I Feel BlahIt's been a year on this journey of finding the right medication to replace phenobarbital. I won't lie. It has been challenging...reactions1comment
Medication and Treatment PreferencesWhat type of treatment do you primarily use to manage your epilepsy? Options: Medication Ketogenic diet Vagus nerve stimulation (VNS) CBD/Medical cannabis...reactions1replySide EffectsTreatment
Bridging the Gap: My Journey as an Epilepsy Nonprofit OwnerLife as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my...reactions2comments
Finding the Right Neurologist I wanted to see if anyone else has issues with finding the right Neurologist. I have been looking for a neurologist who...reactionsrepliesHealthcare Team
When I Reach My Ceiling, Seizures BeginMy seizures are triggered in various ways. Like most people with epilepsy, we learn our triggers over time. I’ve learned my seizure...reactionscomments
5 Things You Should Know Before Switching Epilepsy MedicationEditor's Note: Always consult your doctor before making any changes to your medication or treatment plan. Living with epilepsy means navigating the...reactions1comment
Navigating Workplace Challenges: Overcoming Epilepsy StigmaIn today's diverse workplaces, I often face significant challenges due to stigma and discrimination associated with my epilepsy. Overcoming these obstacles requires...reactions10comments
Navigating a Sudden Change in Healthcare Providers: Tips for a Smooth TransitionFinding the right doctor can be a trying task. I thought I had found the right doctor. So much so, that we...reactionscomments
Empowering the Epileptic Journey: Navigating Work and Transportation ChallengesHey fabulous souls, it's Derra Howard, your guide in the world of style and resilience. Today, let's dive into a topic that's...reactionscomments
What's your seizure journey? In for questionsHi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you...reactions1replyDiagnosisSeizuresTypes of Epilepsy
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate...reactionscomments
Understanding Epilepsy Treatment and If Surgery Is an OptionA few years ago, I went to the doctor to see if I qualified for epilepsy surgery. I stayed in the hospital...reactionscomments
Finding the Right Medication CombinationHaving side effects with any medication is inevitable unless you luck out. However, my medications really didn't start to give me any...reactionscomments
Empowering Law Enforcement With Seizure Safety TrainingEmbarking on a transformative journey with the Epilepsy Foundation of America and the Public Health Institute in Atlanta, my mission was clear:...reactions2comments
Weaning Off Of Phenobarbital Again – The Right WayA few years ago (in 2018), I tried to get off of phenobarbital with another doctor. However, it was a frightening experience...reactionscomments
