Epilepsy Is Quite Tricky: The Many PivotsEpilepsy is quite tricky. The other night, I woke up because I felt intense jerking in my sleep, a rare occurrence. That night, it happened. I got up and got...reactionscomments
Where Did the Spoon in Mouth Myth During a Seizure Come From?Where did the spoon-in-mouth myth during a seizure come from? I always wondered where it came from. So I looked it up. In medial writings from the 19th Century, people...reactionscomments
Living with Epilepsy: My Journey of ResilienceEpilepsy is more than a medical condition. It tests your limits, reshapes your priorities, and ultimately teaches resilience. You become adaptable. My journey with epilepsy has been a journey marked...reactions15comments
A Successful Medication Change: Titrating Off Phenobarbital PausedAfter a year and five months of weaning off phenobarbital, I stopped the process. I stopped the process because I needed some normalcy again. I’m not sure if it was...reactions4comments
My Journey to Medical Marijuana: A Search for ReliefLiving with epilepsy can be complex at time. I have been looking for the perfect medication combination for a year now. I have tried several medications, but it truly has...reactions3comments
New Medication, But I Feel BlahIt's been a year on this journey of finding the right medication to replace phenobarbital. I won't lie. It has been challenging. I have dealt with a range of challenges...reactions1comment
Medication and Treatment PreferencesWhat type of treatment do you primarily use to manage your epilepsy? Options: Medication Ketogenic diet Vagus nerve stimulation (VNS) CBD/Medical cannabis Surgery Other Have you experienced significant side effects...reactions1replySide EffectsTreatment
Bridging the Gap: My Journey as an Epilepsy Nonprofit OwnerLife as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my resources and network together for a good cause:...reactions2comments
Finding the Right Neurologist I wanted to see if anyone else has issues with finding the right Neurologist. I have been looking for a neurologist who has bedside manner and cares about my journey...reactionsrepliesHealthcare Team
When I Reach My Ceiling, Seizures BeginMy seizures are triggered in various ways. Like most people with epilepsy, we learn our triggers over time. I’ve learned my seizure triggers are lack of sleep, drinking, stress, and...reactionscomments
5 Things You Should Know Before Switching Epilepsy MedicationEditor's Note: Always consult your doctor before making any changes to your medication or treatment plan. Living with epilepsy means navigating the world of medication to find what works best...reactions1comment
Navigating Workplace Challenges: Overcoming Epilepsy StigmaIn today's diverse workplaces, I often face significant challenges due to stigma and discrimination associated with my epilepsy. Overcoming these obstacles requires a concerted effort from both individuals and organizations...reactions10comments
Navigating a Sudden Change in Healthcare Providers: Tips for a Smooth TransitionFinding the right doctor can be a trying task. I thought I had found the right doctor. So much so, that we came up with a two-year plan to wean...reactionscomments
Empowering the Epileptic Journey: Navigating Work and Transportation ChallengesHey fabulous souls, it's Derra Howard, your guide in the world of style and resilience. Today, let's dive into a topic that's close to my heart – navigating life with...reactionscomments
What's your seizure journey? In for questionsHi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...reactions1replyDiagnosisSeizuresTypes of Epilepsy
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate dance between hope and uncertainty. Recently, I made...reactionscomments
Understanding Epilepsy Treatment and If Surgery Is an OptionA few years ago, I went to the doctor to see if I qualified for epilepsy surgery. I stayed in the hospital over 2 weeks. I did not qualify because...reactionscomments
Finding the Right Medication CombinationHaving side effects with any medication is inevitable unless you luck out. However, my medications really didn't start to give me any issues, per se. It was the long-term side...reactionscomments
Empowering Law Enforcement With Seizure Safety TrainingEmbarking on a transformative journey with the Epilepsy Foundation of America and the Public Health Institute in Atlanta, my mission was clear: to enhance seizure safety awareness within law enforcement...reactions2comments
Weaning Off Of Phenobarbital Again – The Right WayA few years ago (in 2018), I tried to get off of phenobarbital with another doctor. However, it was a frightening experience for me and my family. My doctor at...reactionscomments
