Bridging the Gap: My Journey as an Epilepsy Nonprofit Owner

Life as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my resources and network together for a good cause: epilepsy awareness.

A rewarding experience

This was my nonprofit’s second year at Essence Festival. This experience was truly challenging and rewarding at the same time.

I was so happy that the organizations pulled together at the last minute to make this all possible. This journey has been a blend of personal growth and a realization that I am running an organization. It is consistent learning, pushing myself, and through it all finding balance.

Essence was a three-day festival. This year, our theme was Bridgerton-ish. We were “Bridging the Gap with Epilepsy.”

It was a marathon of information, and we gave out raffles and explained what epilepsy is. Everything was purple, with a floral artificial wall, turf grass, and everyone was dressed in some form of purple.

Creating community

One of the most memorable moments of Essence is the community. I met so many epilepsy survivors. So much so, that I had to start a contact list.

We shared our epilepsy stories and laughed together. This was so fulfilling, because epilepsy community is so important.

I met a few ladies my age and we hit it off immediately. I quickly started to learn that it wasn’t just a contact list, we’re building community.

The conversation, the people, and the energy. So many people have been affected by epilepsy looking for community.

Personal growth through challenges

There were a few challenges on this journey to Essence. In my case, I have learned to spread out tasks and yes I can ask for help. My godchildren, friends, mother, and volunteers were great support for us.

The journey hasn't been without its obstacles. I created index cards and checked off things as I completed them. I had friends help me put together the backdrop and my godchildren, and I, did the swag bags.

As I look to the future, it will only get better. We’ve created a new network of people and a new epilepsy community. We haven’t figured out the plans for the future yet, but we are excited about the future.

For me, I am still learning this nonprofit sector. Being an epilepsy advocate is so rewarding. 

I am willing to give myself grace. I have huge dreams for us and I can not wait to see them come to fruition.

Reflecting on the journey

In conclusion, life as an epilepsy nonprofit owner is a constant evolution. It's about finding balance, building community, and growing through challenges.

Every day brings new experiences, new people, and new ways to spread epilepsy advocacy. The journey is filled with unexpected turns and learning opportunities, but the dedication to making a difference remains unwavering.

Each connection made and every story shared reinforces the importance of the mission to spread epilepsy awareness. This has been a fun and memorable experience. 

I can't wait to the next one!