Epilepsy Medication Changes: Striving for Normalcy

Living with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate dance between hope and uncertainty. Recently, I made the decision to switch from Vimpat to Brivact, driven by the unsettling side effects that Vimpat seemingly brought into my life – uncontrollable shaking that seemed to have no rhyme or reason.

Also, I am still on phenobarbital. It's a process to get off of that one. As of now, I'm trying to find another medication that would or could take it's place.

Why am I changing epilepsy medications?

The ultimate goal behind these medication changes is simple yet profound: I want to feel normal and live a life that isn't overshadowed by the unpredictable nature of epilepsy. More than just managing seizures, this journey is about reclaiming control over my body and, in turn, my life. The stakes are even higher as I dream of building a family and sharing my life with my future husband.

The decision to switch medications is intensely personal. It requires a constant awareness of how my body responds, a balance between therapeutic benefits and potential side effects. It's a journey of self-discovery, one where I can only gauge how my body feels or tolerates these changes.

The path is filled with ups and downs, and the recent transition from Vimpat to Brivact is just one chapter in this ongoing saga. This process is far from easy.

It's emotionally and physically draining

It's a rollercoaster of emotions and physical sensations, a journey marked by the hope of improvement and the anxiety of the unknown. I'm hopeful, I am. Each decision I make about my medication is a step toward stability, but it's also a leap into the unknown, hoping that the grass is greener on the other side.

As I navigate these medication changes, I am acutely aware of the impact they have on my plans for the future. It's not just about my well-being, it's about creating a foundation for a family and a life with someone I love. Being able to build a legacy and have little children running around. I want that. Not tomorrow, but in the near future. 

The medications I take today play a pivotal role in shaping the possibilities of tomorrow, adding a layer of complexity to an already intricate process.

Sharing my experiences with the epilepsy community

The resilience required to face these decisions sometimes feels overwhelming. Yet, in sharing my experience, I hope to connect with others who may be on a similar path. The journey of managing epilepsy is unique for each of us, but the challenges we face are universal.

Through openness and sharing, we can build a community that understands the intricacies of this journey and supports one another through the highs and lows.

Changing medication and a bright future ahead

In the midst of these challenges, I find strength in the hope that each medication change brings. My commitment to creating a future despite epilepsy's hurdles is a testament to the human spirit's resilience. As I continue this journey, I carry not only my own hopes and dreams but also the collective experiences of those who face epilepsy's complexities with courage and determination.

Here's to navigating the unknown, one medication change at a time. In pursuit of a normal and fulfilling life.