Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about epilepsy.

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

Has epilepsy affected your friendships?

Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges. Has epilepsy affected your friendships? Has your condition made...

Rare/Unusual epilepsy?

I have an unusual chronic electric sensation deep in my brain that might be rare type of epilepsy? I have no uncontrol movement/motor issue. This happened after a chemical trauma...

TBI Recovery Time

Hello Everyone, My mother has had a seizure 3 weeks ago out of the blue one morning. I immediately called 911 and she was administered several anti seizure medications along...

After effects of have a seizure

I used to be 6 years free of having any seizures. Unfortunately in early December of last year I had a grand Mal seizure that went static, I'm not sure...

Coping with AEDs in far off places

How do you cope taking regular AEDs when in a very different time zone? I would so like to travel but have to say no only due to very different...

Seizures with no medical answers

I have been having seizure episodes for a little over 2 years now. Some times they mimic gran mal seizures and other times it will mimic absence seizures. I have...

How many seizures do you have annually

As mentioned, I am an oldie in the UK. Last month I was very surprised but pleased to hear the amount of seizures one experiencing annually nowadays...

Eyelid fluttering

Hi everyone! I was diagnosed with Juvenile Myoclonic Epilepsy 10 years ago and have been on 200mg of Lamictal twice a day since then. Last year, I started having really...

Left temporal lobe epilepsy medications

If anyone here has left temporal lobe epilepsy and has had success with medications that have stopped your seizures please let us know which medications you’re taking. Thanks!...

Categories

Select a category to find topics that interest you.