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Read conversations, start a discussion, and connect with others about epilepsy.

Postictal timeline

How long do some people go through recovering from a seizure? It takes me approximately two weeks to get back to myself....

How do you deal with celebrations and events centered around drinking?

As we know, every May 5th is Cinco De Mayo – a day of partying, celebrating, and out-of-this-world fun. As a community, we know limitations are greater for some, especially...

VENT: How are you doing? - Really.

Life with a chronic condition, like epilepsy, has its challenges and frustrations - that is no secret. Sometimes it is helpful to talk about those frustrations or upsetting times and...

Absence Seizures

My recently diagnosed 13 year old suffers from a lot of absence seizures particularly when he's stressed. Some of these absence seizures appear to last 10-15 minutes or longer. I...

How did you learn that menstrual cycles can impact epilepsy?

As young girls and women, our entire being changes during puberty, starting with our hormones, which can be scary, confusing, and awkward. But, for us as young girls and women...

The best smart watch to alert a carer to a tonic clonic seizure

My 13 year old boy was recently diagnosed with Juvenile Myclonic Epilepsy has a tonic clonic seizure every few months and lots of long absence seizures daily. He's at a...

Has anyone ever tried deep brain stimulation to treat their epilepsy?

How did it go and has it improved your life?...

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was 11. It’s good to share stories. My worst...

How do I cope with temporal seizures?

Hi, I am f 24 and I am new to epilepsy. This will be a long post so please bare with me. :) 10 months ago I started having some...

God has a sense of humor

Recently I have been diagnosed with Epilepsy, when I say recently, I mean 3 years ago. Let me just put this out there, I am a terrible patient and I...

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