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Read conversations, start a discussion, and connect with others about epilepsy.

Fever-Triggered Epilepsy

Do you have fever-triggered epilepsy? What do you do to overcome it?...

Neurologist

I have this neurologist and she is rubbish 5 years ago she overdose me with topimate to the point where I had 5 seizures in a row. I then found...

Fear after a seizure

I had a seizure and when I got into the house I felt this fear that something has happend like someone murdered someone or someone is in this house. I...

What Burdens Do You Carry?

Living with epilepsy can often feel like a heavy burden—one that affects yourself, your family, and your friends. This forum is a safe space to share your experiences, challenges, and...

Seizure with convulsions but conscience?

Hello, I’m a 30 year old female with a 15 year history with epilepsy. I’ve had many different types of seizures over the years. Recently, the seizure symptoms I’ve had...

No more precursors/ notices before a seizure

Hi guys, I don't know how to word this properly but before I used to get tonic clonic seizures, I would always have a like anxiety attack feeling that would...

Age 5 epilepsy - carbamazepine not working?

Hi , just after some experiences / advice on what to expect. My daughter who’s 5 has had epilepsy since she was 3. Started with focal seizures during the night...

Hello! My Name is Amy

At seventeen years old, I got first grand mal seizure, but I worked through the seizures not knowing what was going on until one of the coworkers saw my seizures...

Can Lithium medication cause seizures

I was put on 1000mg Lithium medication for Bipolar Affective Disorder and I had a tonic clinic seizure on my way to visit my Aunt’s. I bit my lip, had...

Alarming loved ones

Hi all. I was wondering if anyone has or knows of good systems which will alarm loved ones etc when you have a seizure, I have nocturnal Epilepsy and have...

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