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Read conversations, start a discussion, and connect with others about epilepsy.

Rare Epilepsies Series: Dravet Syndrome

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced Dravet syndrome?...

Recent issue with insurance

Hi everyone, little backround info first. I’m 28 I’ve had epilepsy since I was born. As a child I had petit mal seizures and as I got older those stopped...

16 year old with seizure like activity

My 16 year old daughter gets extreme nausea then about 2-3 minutes later has seizure like activity…eyes rolling back in her head, stiff legs and arms and her hands draw...

Sleep with Epilepsy

Good morning. When I wake up, I feel overwhelmed if I think too much such as thinking of all the things I have to do in the day and whenever...

How do you guys recover from a seizure ? is it rest? being productive ?

Well, last Saturday, I had a seizure. After 4-6 months of being episode free, I was celebrating just a little bit; I've been working to stay alive, having a balance...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...

Words of Encouragement

The importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...

Thoughts on Epilepsy and dating

What are ways you guys maintain an active dating life while your seizures are active?...

Is it epilepsy?

Hi, I don't know if it is a right community to reach out to, so sorry in advance. Almost every day when I lay down and think about my day...

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I Am More Than My Epilepsy

Join the discuss by sharing why you don't let epilepsy get in the way of who you want to be. Your goals, successes, joys – why haven't you let epilepsy...

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