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Read conversations, start a discussion, and connect with others about epilepsy.

16 year old with seizure like activity

My 16 year old daughter gets extreme nausea then about 2-3 minutes later has seizure like activity…eyes rolling back in her head, stiff legs and arms and her hands draw...

Sleep with Epilepsy

Good morning. When I wake up, I feel overwhelmed if I think too much such as thinking of all the things I have to do in the day and whenever...

How do you guys recover from a seizure ? is it rest? being productive ?

Well, last Saturday, I had a seizure. After 4-6 months of being episode free, I was celebrating just a little bit; I've been working to stay alive, having a balance...

What are the best glasses for photosensitive epilepsy?

My 15 y.o. daughter has photosensitive epilepsy and with polarized glasses we can keep under control. She wears them whenever is sunny and she had had no more seizures. She...

Words of Encouragement

The importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...

Thoughts on Epilepsy and dating

What are ways you guys maintain an active dating life while your seizures are active?...

Is it epilepsy?

Hi, I don't know if it is a right community to reach out to, so sorry in advance. Almost every day when I lay down and think about my day...

Featured

Epilepsy Awareness Month: I Am More Than My Epilepsy

We will celebrate Epilepsy Awareness Month by honoring each individual's unique journey, recognizing that epilepsy is just a part of one's story, through the theme of: "I am more than...

Does Coffee Trigger Epilepsy?

Hi guys, Hope you all are doing well! I am actually a sufferer of Photosensitive Epilepsy. This means that lights trigger epileptic seizures in my case. Of course just like...

transportation with epilepsy

I am about to start a new job in my career field that is JUST out of reach by public transit. It's a hybrid job so I only need to...

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