For those of you who think that nothing has changed for people with epilepsy I can tell you that you are wrong.
When I first started in the 1950s there was not even a handful of AEDs to chose from and the medical technology has completely changed. In those days If anyone were plucky enough to go through having a lobotemy it was the talk of the town as it was all done manually at one hospital in the UK.
There were no scans, instead I had lumber punctures that took 24 hours to recover from, while today if they are used at all, one is put under anesthetic before a lumber puncture.
I felt as if I was teaching the Consultants more than them advicing me.
I went away to school where all we had was a matron, Miss Payne and believe me she was a pain!
With no Head of a house to talk to as there is today I became rather concerned before taking what we called then O'Level examinations. One night my seizures returned which naturally woke up the other girls who, at that time, thought I had gone mad when watching me have a seizure. However, the worst was to come when the Head phoned my parents to take me away from the school which naturally shooked me to bits but I had to carry on. However, I manged to finish my education at as a day girl at a school that was near to where my parents lived and now I feel more positive about the change as I found the young ladies there so much more sociable than those at the boarding school.
In 1996 I spoke out about wanting young people to be more acceptable for careers of their choice which I am so pleased seems to now be the case.
Good luck all,
Cath 5