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EPILEPSY BRAIN

I never knew epilepsy meant anything besides someone who shook with seizures… never knew of diff type of seizures never heard of memory loss…. Boy oh boy a year and half ago I learned quickly all seizures don’t shake some are just the opposite…. And I have amnesia severely now. I’m struggling to find help to get myself back to my full mental capacity. I was an executive manager earning 140k yearly. Was fired and now can’t keep my self on track long enough to apply interview and accept a new role if I try. Anyone else have severe memory issues???

  1. I've never posted on these but I can't handle reading people having save issues. I'm a medical professional and in 2020 I lost everything from epilepsy. My career, driving, and yes my memory. I can remember 20years ago easy but not yesterday. I hate looking at pictures something I've always done. Now they just upset me cause I don't remember. I freak out even people tell me the year or the date. The worst is coming out of big seizures or multiple ones of all kinds in a row. I feel like a lil kid. It's embarrassing. I gave to do everything in steps. I brushed my hair with a toothbrush or put trash in the washing machine. Makes me sad for all of us. I hate not being able to do my job. Can you imagine me trying to run around in a fast paced er doing my job. It's been 4 years but I had to let that go. I just wanna remember yesterday and I get so bored. It's the holidays. I could decorate but why or ask that effort in for no memories, just pictures that I will see later and depending on the day I see them I could smile or be super sad. This stinks but I'm proud I posted something. I read this all the time.

    1. Wow, you’ve explained me absolutely identically. I’m kinda in awe. But I do Hope you find some relief and feel Better quickly. I’m not going to give up until I find help. The drs I have treat the seizures only none have shown concern or effort to treat my memory or personality or vocabulary effects.

      1. I am exactly the same. I have temporal lobe epilepsy and my memory has gotten worse to the point I even asked my daughter did she think I had dementia. I cant remember past events or sometimes the sentence Ive just spoken. I cant find the right word for things and often say something completely different. If Im taking notes at a meeting I cant catch up with the end of a sentence and end up with unfinished scribbled notes that look like a 5yr old has written. Same with adding up - even simple maths become difficult.
        I really feel for you as it effects every part of our lives. Im researching ways to battle it. Take comfort in the fact you are not alone or going mad.

        1. also am Searching ways to battle the best I can and won’t give up until I do. I recently connected with a program that I am on waiting list to start. Best wishes and prayers for you today. I just don’t understand why more medical professionals don’t focus on the mental illness that follow along with the seizures.

      2. Q

        1. Hi ! Did you have a question or something we can assist with? -Julie (team member)

        2. I have just learned that I have memory problems due to the 3 brain surgeries that I got done. I lost my job because a parent saw me have a seizure. I told her that I have epilepsy and that was a seizure What she saw a a laughing seizure (galactic seizure). I explained this to her. She went to my manager and told Kacey, my manager that she doesn't want me to work there anymore So, the next day When, I walked into work. She called me into her office and told me that I was fired, because of my seizures. I worked at Kinder Care Centers, in Warren New Jersey. I have not worked since then. Have taken care of my family, myself to. Making sure I take my meds. Get proper sleep and eat well I feel very isolated because, I don't drive, so I have to wait until the weekend So, some one can take me to the food stores, a walk and get some ice cream

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