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Read conversations, start a discussion, and connect with others about epilepsy.

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Keppra Rage

I am 57 years and on a strong dose of Keppra plus tegretol and clobazm. I have dealt with several major life events over the last 4 years. My seizures...

Partial complex seizures and driving

I am 30 years old I've been living with absence and partial complex seizures for 20 of those years. I think they are under control with lamictal however I don't...

Controlling seizures

Hi all, I’m new to this forum and recently diagnosed with epilepsy (April this year). I’m currently on 250g a day of lamotrigine. I went 9 weeks without a seizure...

Gibraltar support

Hi I'm looking for support from someone in Gibraltar who has been diagnosed with epilepsy. Willing to meet up.for coffee and share experiences and advice in what is a completely...

First time seizure

Hi there So i’m a first year college student and I had my first grand mal seizure a few days ago. It was pretty bad, I was shaking really violently...

waking up and having a seizure

god dam. waking up and going straight in to a seizure completely sucks. I have been feeling rough (actually, I feel roughter than usual, I'm even surprised) hope my day...

Partial SZ with bradycardia

Hey everyone, I have a fairly recent questionable seizure-like activity that started in 2021, and im a 28yr female. It started when I had an intense deja-vu episode while driving...

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