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Read conversations, start a discussion, and connect with others about epilepsy.

God has a sense of humor

Recently I have been diagnosed with Epilepsy, when I say recently, I mean 3 years ago. Let me just put this out there, I am a terrible patient and I...

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Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

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Seizure care as someone with epilepsy

As someone with epilepsy, how do you want to be cared for when you have a seizure?...

What has been your most embarrassing epilepsy moment?

Awkward moments can be hard to open up about, but sharing can help us see we are not alone in these experiences....

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

How has epilepsy impacted your relationship with your family?

How well does your family understand your epilepsy? Do your family members fully understand how epilepsy impacts you? Are they familiar with the side effects of your medications and how...

Keppra Rage

I am 57 years and on a strong dose of Keppra plus tegretol and clobazm. I have dealt with several major life events over the last 4 years. My seizures...

Partial complex seizures and driving

I am 30 years old I've been living with absence and partial complex seizures for 20 of those years. I think they are under control with lamictal however I don't...

Controlling seizures

Hi all, I’m new to this forum and recently diagnosed with epilepsy (April this year). I’m currently on 250g a day of lamotrigine. I went 9 weeks without a seizure...

Gibraltar support

Hi I'm looking for support from someone in Gibraltar who has been diagnosed with epilepsy. Willing to meet up.for coffee and share experiences and advice in what is a completely...

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