God's graceThis has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...Reactions 0 reactions Comments2 repliesAwarenessCopingDiagnosis
How do you guys recover from a seizure ? is it rest? being productive ?Well, last Saturday, I had a seizure. After 4-6 months of being episode free, I was celebrating just a little bit; I've been working to stay alive, having a balance...Reactions 0 reactions Comments3 repliesCopingSide EffectsTips & Advice
She has Sparks in her Brain and Love in her HeartI was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...Reactions 0 reactions Comments0 repliesAwarenessCopingDiagnosis
More than epilepsyMy 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...Reactions 0 reactions Comments2 repliesAwarenessCaregivingCoping
Tbi and epilepsy…Anyone have tbi and develop epilepsy after? Where you feel like you become someone else. You think you’re crazy all the time and you think you’re seizures are all in...Reactions 0 reactions Comments1 repliesCopingCognitive IssuesDiagnosis
Welcoming my 40's with epilepsyI started all of this, out of nowhere, at the age of about 39. My first doctor told me, after a night of 7 terrible seizures, that it was all...Reactions 0 reactions Comments1 repliesCopingDiagnosisSeizures
TbiHi community! I never had seizures as a kid but in my late forties I started having them at work I thought it was stressed related but now fifty I...Reactions 0 reactions Comments1 repliesCognitive IssuesCopingSeizures
Words of EncouragementThe importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...Reactions 0 reactions Comments0 repliesTips & AdviceAwarenessCoping
Thoughts on Epilepsy and datingWhat are ways you guys maintain an active dating life while your seizures are active?...Reactions 0 reactions Comments2 repliesTips & AdviceCopingSeizures
Cognitive ability I have had seizures for approximately 50 years now. I also have severe memory loss. I don't remember anything long term or recent memory. In fact, I rely on family...Reactions 0 reactions Comments2 repliesCognitive IssuesCoping