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Read conversations, start a discussion, and connect with others about epilepsy.

Hello! My Name is Diana Berg

Diagnosed when I was 9 started out with just seizures in my sleep when I got older I got the grand mal ones even though I seizures I have 2...

I am more than my epilepsy

I had a stroke and my first 2 seizures when I was 17, days away from turning 18. This happened on thanksgiving morning back in 2010 at about 2:30a.m. and...

My story isn't over

I have been epilepsy warrior since I was 6 months old. The last time I have had a seizure has been since May 2022 had multiple seizures. I have been...

Rare Epilepsies Series: Infantile Spasms (West Syndrome)

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Share with us: Has your child experienced infantile spasms (West syndrome)?...

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Unveiling the Truths About Living With Epilepsy

Living with epilepsy can be challenging, so we'd like to create a space where you can share what you find most challenging about managing epilepsy. What are the some of...

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Living with epilepsy

Living with epilepsy can be challenging. How do you deal with epilepsy? Tell us about your experience....

Does anyone know when they are going to have a seizure?

Epilepsy Labels: Is It a Disease, Disorder, or Condition?

We understand that names and labels matter! Despite their intent to inform, labels sometimes feel stigmatizing. As part of our effort to support people living with epilepsy and those who...

Survey Closed! Will you take our In America survey and help others understand the true impact of epilepsy?

This Survey Is Now Closed. Thank you so much for your interest and participation! Epilepsy is the fourth most common brain disorder in the United States after Alzheimer’s disease, migraine...

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