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Read conversations, start a discussion, and connect with others about epilepsy.

Can Epilepsy vary throughout the year?

This is known as Seasonal Epilepsy. As a caregiver to a loved one who fights seizures and the side effects, I had no idea this was a thing . Read...

Do flashing lights displays in malls , at stores , at events , bother you during the holidays season ?

Has anyone else noticed a increase in flashing blinking lights on tv shows etc? How do you navigate , holiday light displays in malls , at events if you are...

Epilepsy commercials on TV?

Why don't we see commercials on TV for either Epilepsy Awareness, raising awareness about SUDEP ( Sudden Unexpected Death in Epilepsy) , why are we not seeing seizure first aid...

Frightened to leave

Only recently have I been diagnosed with epilepsy one of my triggers is periods! After 12 seizures in 3 months I’ve finally got a diagnoses but waiting on medication..I’m scared...

Rare Epilepsies Series: Lennox-Gastaut Syndrome

Epilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Have you or a loved one been diagnosed with Lennox-Gastaut Syndrome?...

God's grace

This has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...

She has Sparks in her Brain and Love in her Heart

I was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Sleeping and wild dreams.

Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused them. I’m wondering drugs. I dream all night...

Words of Encouragement

The importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...

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