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Read conversations, start a discussion, and connect with others about epilepsy.

How did you or your family handle the harmful psychological assumptions?

The ER last year was the first place I encountered such harmful accusation. I’ve read similar stories everywhere. Years ago. Does not need to be ER related. Curious how often...

More than epilepsy

My 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...

Question: What is one thing you wish people knew about Epilepsy?

My answer: Not everyone who experiences seizures , fall to the floor and shake. * I'd love to hear your thoughts #parentperspective...

Can Epilepsy vary throughout the year?

This is known as Seasonal Epilepsy. As a caregiver to a loved one who fights seizures and the side effects, I had no idea this was a thing . Read...

Does anyone experience brain zaps?

I stopped taking my epilepsy tablets for a few years. Besides the occasional “aura”, I didn’t experience any seizures or symptoms - that is, until recently. I’ve been extremely tired...

Sleeping and wild dreams.

Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused them. I’m wondering drugs. I dream all night...

SUDEP Fear in Epilepsy

A person living with epilepsy may experience serious complications, and the fear of those complications is legitimate and real. We would like to ask the community: Do you fear SUDEP...

has this happened to anybody else?

someone turning to yu and saying, I'm sorry, I can't be friends with you because you have seizures I just think that's really messed up logic- especially when it's something...

I have epilepsy but I can drive

I am a Driver no problem me Driving time...

Epilepsy at school - a guide for parents and Caregivers

I found this great link I wanted to share , I hope it helps you and your child navigate Epilepsy at school . Information provided by Canada's Paediatricians ⬇️ https://caringforkids.cps.ca/handouts/health-conditions-and-treatments/epilepsy-at-school...

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