Rare Epilepsies Series: Lennox-Gastaut SyndromeEpilepsy is a complex disorder. Our aim is to highlight rare epilepsy forms in this series. Have you or a loved one been diagnosed with Lennox-Gastaut Syndrome?...Reactions 0 reactions Comments0 repliesTypes of EpilepsyAwarenessCaregiving
God's graceThis has been a journey for me. I have yet to learn all I need to about epilepsy but what I do know I refuse to not live and do...Reactions 0 reactions Comments2 repliesAwarenessCopingDiagnosis
She has Sparks in her Brain and Love in her HeartI was diagnosed with epilepsy in 2003 when I was 13 years old. The past 9 years I was on a medication that didn’t control my seizures well, but allowed...Reactions 0 reactions Comments0 repliesAwarenessCopingDiagnosis
More than epilepsyMy 33 year old daughter Deb was diagnosed with Tuberous Sclerosis in 1990. She presented with infantile spasms at 7 months of age. Despite many meds and ketogenic diet she...Reactions 0 reactions Comments2 repliesAwarenessCaregivingCoping
Sleeping and wild dreams.Ever since I became an epileptic I have had very vivid dreams. The neurologist says it’s probably the seizures that has caused them. I’m wondering drugs. I dream all night...Reactions 0 reactions Comments3 repliesDiet & NutritionAwareness
Words of EncouragementThe importance of community connection and encouragement in dealing with epilepsy is well known, so please share with us: If you had one word of encouragement to give to those...Reactions 0 reactions Comments0 repliesTips & AdviceAwarenessCoping
Will You Take Our 2023 In America Survey?Approximately 3 million Americans have epilepsy. Our 2023 In America survey aims to better understand the patient experience and realities of epilepsy. We can all benefit from your anonymous participation...Reactions 0 reactions Comments2 repliesAwarenessDiagnosisResearch & Clinical Trials
Research in Epilepsy Hello my name is Harrison and I have epilepsy. I am currently at University of Maryland and I am doing a 4 year research program and I wanted to focus...Reactions 0 reactions Comments1 repliesAwarenessResearch & Clinical Trials
FeaturedEpilepsy Awareness Month: I Am More Than My EpilepsyWe will celebrate Epilepsy Awareness Month by honoring each individual's unique journey, recognizing that epilepsy is just a part of one's story, through the theme of: "I am more than...Reactions 0 reactions Comments7 repliesAwarenessTips & AdviceCoping
Does Coffee Trigger Epilepsy? Hi guys, Hope you all are doing well! I am actually a sufferer of Photosensitive Epilepsy. This means that lights trigger epileptic seizures in my case. Of course just like...Reactions 0 reactions Comments1 repliesAwarenessTips & AdviceSeizures