Forums

Read conversations, start a discussion, and connect with others about epilepsy.

Active yesterday

TLE

Hi All I’m Michele from the U.K. I’m 62 and have had TLE (temporal lobe epilepsy) or focal epilepsy since I was...

Active 5 days ago

Questions for Your Doctor

Do you write down questions to ask your doctor before your appointments? Do you use an app, notes, or paper to keep...

Active 6 days ago

Emotional Triggers?

Have you ever noticed a link between heightened emotions (like anger or stress) and your seizures?...

Invisible Parts of Epilepsy

What’s the most exhausting part of living with epilepsy (or supporting someone who does) that people don’t see? Share your experience with...

Grandson- 5 years old - Doose Syndrome

Just Diagnoised with Doose Syndrome. His parents have been with him through 85 days of testing. As a grandparents, my wife and...

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

Grandparents Looking for Help - Doose Syndrome

Our grandson (age 5) was just diagnosed with Doose Syndrome. His parents have been with him through 85 days of testing. As...

Nocturnal seizures

Hi has anyone else had these and none whilst awake ?...

Do you know what triggers your seizures?

This forum was part of our 2025 Giveaway, which is now closed. We welcome our community members to continue discussing seizure triggers...

Explaining Epilepsy to Others

Do you ever get frustrated with having to explain epilepsy to other people? What is the most commonly misunderstood piece of information...

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