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Read conversations, start a discussion, and connect with others about epilepsy.

Looking for answers

Hello everyone my name is Drew and I am 38 years old as have had tonic clonic seizures since I was 7...

First time seizure

Hi there So i’m a first year college student and I had my first grand mal seizure a few days ago. It...

waking up and having a seizure

god dam. waking up and going straight in to a seizure completely sucks. I have been feeling rough (actually, I feel roughter...

Prolific US author advocating putting things in person's mouth having a seizure!

Reading 'My Sister's Keeper' by Jodi Picoult who it's said does masses of research... to find her characters advocating putting things in...

Can you please recommend epilepsy smartwatches?

Hello! I'm exploring options for smartwatches designed specifically for managing epilepsy. Can you provide recommendations or insights on models that offer features...

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was...

supportive housing ideas?

hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to...

What's your seizure journey? In for questions

Hi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you...

Seizures when alone.

I have 3 different types of epileptic seizures. -tonic clonic -focal And myoclonic. Many times after a tonic clonic seizure all 3...

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

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