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Read conversations, start a discussion, and connect with others about epilepsy.

I feel like giving up

After 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...

supportive housing ideas?

hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to keep an eye on me at night. I'm...

What's your seizure journey? In for questions

Hi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...

Seizures when alone.

I have 3 different types of epileptic seizures. -tonic clonic -focal And myoclonic. Many times after a tonic clonic seizure all 3 can happen. I'm on 3 different medications. I...

Caring for Someone With Epilepsy: Seizure Care

As a caregiver, how do you care for a loved one when they have a seizure?...

Was this a seizure?

Hi, 25, F. It was during the night and I was in the bed with my toddler. It felt like I suddenly woke up, but my eyes were still closed...

Has anyone used a Nuface Device?

Nuface is micro current technology which lifts the facial muscles. Has anyone with epilepsy ever had any experience with one?...

High School Prom

I am the Prom advisor for a high school in North Carolina. How can I make my Prom more friendly for students with light sensitivity? In the past, I paid...

Caregiving for a loved one with epilepsy

As a caregiver, how do you care for a loved one when they have a seizure?...

Managing the Aura Phase

I had a question because I'm prepping a first aid presentation about seizures and a kahoot also. So basically if you have someone (an adult) that's currently in an aura...

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