I feel like giving upAfter 4 years of trying to manage this condition I’m starting to wonder… what’s the point? This isn’t the life I was meant to live. This isn’t for me. I...reactions11repliesCopingSeizuresTips & Advice
supportive housing ideas?hi everyone, I have very infrequent but severe (usually status epilepticus) nocturnal seizures, so i always need to have someone around to keep an eye on me at night. I'm...reactionsrepliesCaregivingIntimacy & RelationshipsSeizures
What's your seizure journey? In for questionsHi there! Derra here- before we get started I want to know your seizure journey. What's your seizure story? When did you have your first seizure? When were you diagnosed...reactions1replyDiagnosisSeizuresTypes of Epilepsy
Seizures when alone.I have 3 different types of epileptic seizures. -tonic clonic -focal And myoclonic. Many times after a tonic clonic seizure all 3 can happen. I'm on 3 different medications. I...reactions1replySeizuresTypes of EpilepsyTreatment
Caring for Someone With Epilepsy: Seizure CareAs a caregiver, how do you care for a loved one when they have a seizure?...reactions5repliesCopingSeizuresTips & Advice
Was this a seizure? Hi, 25, F. It was during the night and I was in the bed with my toddler. It felt like I suddenly woke up, but my eyes were still closed...reactions1replySeizuresSleep Types of Epilepsy
Has anyone used a Nuface Device? Nuface is micro current technology which lifts the facial muscles. Has anyone with epilepsy ever had any experience with one?...reactionsrepliesSeizuresTreatmentTips & Advice
High School PromI am the Prom advisor for a high school in North Carolina. How can I make my Prom more friendly for students with light sensitivity? In the past, I paid...reactions1replyTips & AdviceSeizuresWork & Employment
Caregiving for a loved one with epilepsyAs a caregiver, how do you care for a loved one when they have a seizure?...reactions2repliesCaregivingSeizuresTips & Advice
Managing the Aura PhaseI had a question because I'm prepping a first aid presentation about seizures and a kahoot also. So basically if you have someone (an adult) that's currently in an aura...reactionsrepliesSeizuresCaregivingCoping