Hi,
I was diagnosed earlier last year with epilepsy after having my second seizure.
I had my first in 2019 but wasn't treated until I had my second.
Annoyingly the conclusion after my scans that there was no "active epilepsy" found but because it was my second seizure I was being treated for it. So here I am, at nearly 30 wondering how I have only started now. I guess a lot of people are in the same boat.
The first time, I don't remember a thing but, that might be to do with the fact I collapsed and bashed my head on a pool table.
The second time, May last year I was sat on the sofa and I remember it all. The sensation, the thought I was going to die and there was nothing I could do abut it. I also remember seeing my partners face thinking it may be the last time, and then black. Done. Gone.
Thankfully I woke up. I do however suffer with flashbacks and it gives me pure anxiety. I start to think what if this happens when I am alone, what if I'm in the shower, what if I'm driving.
I take medication but I really struggle to get this out of my head.
I don't tell anyone this in my family because A. I don't think they understand and B. I don't want to be a burden and worry everyone.
I take medication anyway for depression which is Sertraline and meant to treat PTSD but it won't go away.
I also find that since my first seizure I just can't retain or learn new information as well as I could before.
Does anyone else have this / have any advice how to deal with it ?
It seems like epilepsy isn't really talked about enough and to be honest, before I was diagnosed I was pretty ignorant towards it too. I can't blame people for it as I was like this myself.