Find Connection: Living with EpilepsyEpilepsy is often misunderstood by those that haven't been impacted by it. That is why our forums have been a safe space...reactions1comment
With Every Medication Comes a Side EffectA number of years ago, my epileptologist and I were discussing whether Lamictal XR or another drug should be tried. We decided...reactionscomments
Epilepsy and Screen Time: Understanding the Connection and Reducing Seizure RisksOne type of epilepsy, called reflex epilepsy, involves seizures that are triggered by certain sensory events. Triggers often come from the environment...reactions7comments
Empowering the Epileptic Journey: Navigating Work and Transportation ChallengesHey fabulous souls, it's Derra Howard, your guide in the world of style and resilience. Today, let's dive into a topic that's...reactionscomments
I'm a Mom With Epilepsy – Here Are My TipsMotherhood and epilepsy... Y'all, it has been a wild ride! I have made it more than a year into this world of motherhood, how...reactionscomments
Debilitating Medication Side Effects: Chronic NauseaNavigating the delicate balance between health and medication side effects is an ongoing challenge, one faced daily by many individuals with chronic...reactionscomments
Putting On My "I'm Fine" Face With EpilepsyIs it normal to say "I'm fine" when you're clearly not? Or perhaps it's easier than explaining your situation to those around...reactions1comment
Riding Roller Coasters with EpilepsyWhen you're an adventurous child filled with imagination and delight, amusement parks can be some of your best childhood memories. For me...reactions1comment
We Had Never Heard of Dravet Syndrome – Until His DiagnosisThe first time I Googled "Dravet syndrome" was the day we got our diagnosis for our son Will – the first time...reactionscomments
Epilepsy Medication Changes: Striving for NormalcyLiving with epilepsy has been a journey filled with twists and turns, and the quest for the right medication is a delicate...reactionscomments
Trigger Truths: Tell Us About Your Seizure TriggersAre there certain situations that lead to your seizures? We call these seizure triggers. And the truth is, they're different for everyone...reactionscomments
Swimming With EpilepsyDo you like to swim? I sure do. But even as an adult going for a splash, I know it's important to...reactions2comments
Experimenting With CoffeeLet's talk about the amazing smell of freshly brewed hazelnut coffee. I love sipping on a cup while juggling two kids, a...reactions2comments
Loss of Speech After a SeizureSeizures start from abnormal electrical activity in the brain. They affect muscle control and language. They also affect vision and movement. A...reactionscomments
Experiencing a Seizure Caused by a Medical TestI had to go in for some pulmonary testing, which included the pulmonary function test. This test requires you to do 4...reactionscomments
Staying Calm and Managing Anxiety During a Hospital StayI had always been afraid of hospitals. The smell of disinfectant, the sterile environment, the unknown — it all made my heart...reactionscomments
"But You Don't Look Sick?" And Other Questions I Get About My EpilepsyWhen I first began to go to a specific bar in Queens, New York, I did not drink alcohol because it is...reactionscomments
Understanding Epilepsy Treatment and If Surgery Is an OptionA few years ago, I went to the doctor to see if I qualified for epilepsy surgery. I stayed in the hospital...reactionscomments
How Sleep Can Impact SeizuresWe have all heard how getting enough sleep is a crucial aspect of overall health. Getting the proper amount of sleep each night...reactionscomments
Our Child Has a Dravet Syndrome... How Does It Affect His Siblings?When I was pregnant with Will, my second baby and Dravet child, I had their whole lives pictured in my head. I...reactions1comment
