Bridging the Gap: My Journey as an Epilepsy Nonprofit OwnerLife as the founder of an epilepsy nonprofit has been a whirlwind of experiences. In July, I was able to pull my resources and network together for a good cause:...reactions2comments
What College is Right For You?The preparatory school that that I attended as a teen was a high school that I found while searching for a high school for students with disabilities. My neurosurgeon had...reactions1comment
Seizures and Epilepsy in the LGBTQ+ PopulationAbout 2.4 percent of people who identify as LGBTQ+ have epilepsy. That is compared to 1.2 percent of cisgender heterosexual people. Cisgender means identifying as the same gender you were...reactionscomments
Community Pulse: Epilepsy in the MediaThe way epilepsy is shown in the media can have a big impact on how people understand the condition. Unfortunately, portrayals can sometimes spread misinformation or overlook the real experiences...reactionscomments
Other Medications’ Impact on the Effectiveness of Seizure MedsI’ve shared about the challenges that can arise from medication side effects. There is another side to medication side effects than how they impact your own body. Currently, I’m facing...reactions7comments
When I Reach My Ceiling, Seizures BeginMy seizures are triggered in various ways. Like most people with epilepsy, we learn our triggers over time. I’ve learned my seizure triggers are lack of sleep, drinking, stress, and...reactionscomments
Preparing for Back to School With EpilepsyAs the back-to-school season approaches, it's essential to address how adult students with epilepsy, particularly those who are nonverbal, and their caregivers can prepare for a successful academic year. Managing...reactions2comments
5 Things You Should Know Before Switching Epilepsy MedicationEditor's Note: Always consult your doctor before making any changes to your medication or treatment plan. Living with epilepsy means navigating the world of medication to find what works best...reactions1comment
Learn About Epilepsy, Live Happy, and Carry OnDo you not fully understand epilepsy and seizures? If newly or not newly diagnosed, it is great to read books such as "Information About Epilepsy" and go to lectures in...reactions1comment
How My Epilepsy Medication Has Made Me TiredI want to talk about the changes that happened to my body after surgery, especially for my epilepsy and the tiredness felt by my body after taking my epilepsy medication...reactions1comment
Navigating the Prior Authorization MazeWhile intended to ensure appropriate and cost-effective care, prior authorizations often create significant barriers to patients and caregivers. This can impede timely access to necessary medical interventions, like anti-seizure medications...reactions1comment
Navigating Workplace Challenges: Overcoming Epilepsy StigmaIn today's diverse workplaces, I often face significant challenges due to stigma and discrimination associated with my epilepsy. Overcoming these obstacles requires a concerted effort from both individuals and organizations...reactions10comments
Connecting With Others in Our Epilepsy CommunityNavigating life with epilepsy can be intimidating and confusing. It's especially hard without support. Receiving a diagnosis of epilepsy can be overwhelming. You're faced with an overwhelming amount of new...reactionscomments
Navigating a Sudden Change in Healthcare Providers: Tips for a Smooth TransitionFinding the right doctor can be a trying task. I thought I had found the right doctor. So much so, that we came up with a two-year plan to wean...reactionscomments
False Evidence Appearing RealA therapist once told me that fear stands for “False Evidence Appearing Real.” I liked this analogy because it helped me feel less anxious about my fears for the future. As a...reactions1comment
The Twelve Hour CycleIt's 7:00 a.m., and my medication alarm goes off. I get up and walk over to my locked medicine cabinet, taking my lamotrigine and vitamins. Then I go about my...reactions2comments
Was That a Nightmare? Frightening Seizures and Postictal StatesYou might assume that getting pulled beneath a highway bridge while walking to school, where a bully shoved a weapon at me, was the scariest experience in my life. The...reactionscomments
Find Connection: Living with EpilepsyEpilepsy is often misunderstood by those that haven't been impacted by it. That is why our forums have been a safe space for those with the condition to chat about...reactions1comment
With Every Medication Comes a Side EffectA number of years ago, my epileptologist and I were discussing whether Lamictal XR or another drug should be tried. We decided to attempt Lamictal XR, and if it did...reactionscomments
Can Too Much Screen Time Cause Seizures?One type of epilepsy, called reflex epilepsy, involves seizures that are triggered by certain sensory events. Triggers often come from the environment, like flashing lights or loud noises. Looking at...reactions3comments