Delays in Getting Proper Epilepsy Treatment When someone has epilepsy, they may experience a delay in receiving treatment. The delays happen for a variety of reasons. Doctors may not be able to diagnose epilepsy quickly. Some...Reactions0reactionsComments2 comments
What Is the "Postictal State" of a Seizure?I want to share some information about the postictal state of a seizure. What does this mean? You all always ask excellent questions. Here's what I know about the postictal...Reactions0reactionsComments8 comments
What Is the Epilepsy-Migraine Connection?Migraine and epilepsy may not seem related at first. However, they sometimes share symptoms and even underlying causes. These conditions also often occur together. Migraine and epilepsy are both chronic...Reactions0reactionsComments0 comments
Epilepsy Labels: Is It a Disease, Disorder, or Condition?We get it. Names and labels matter. While they are often meant to inform, labels can sometimes feel stigmatizing. Some people living with epilepsy take issue with it being called...Reactions0reactionsComments1 comments
Epilepsy and My Mental HealthI believe we can all agree that mental health is as important as physical health. Sadly, epilepsy can impact mental health. Depression and anxiety are extremely common in our community...Reactions0reactionsComments1 comments
Living Your Best Epileptic LifeHave you ever felt the disappointment of waking up, wishing you had the energy and the mental clarity to go about your day? Wondering how you will persevere through the...Reactions0reactionsComments3 comments
When a Seizure Isn’t a Seizure After AllAn unexpected visit to the cardiology floor marked the highlight of my first video EEG testing in Michigan in 2012. What may have appeared to be drop seizures were actually...Reactions0reactionsComments0 comments
What Does Epilepsy "Look" Like?How many people have found themselves pinned in a stereotype? It’s not your fault by any means. Another person has an almost immediate perception of you. Research shows that a...Reactions0reactionsComments0 comments
Embarrassed or Embracing Epilepsy?Am I embarrassed by epilepsy? I will answer that in a short while. I was 10 when I had my first epilepsy seizure. I didn't like it. I remember my...Reactions0reactionsComments0 comments
Epilepsy: So Much More Than SeizuresWhen you hear "epilepsy," you might think of what you have seen on TV or in a movie. A convulsive seizure, someone falling to the ground and shaking. But anyone...Reactions0reactionsComments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with epilepsy. New here? We invite you to explore what...Reactions0reactionsComments0 comments
How I Was Finally Diagnosed With Absence SeizuresLet me tell you about the unusual way I found out I had seizures... At 16, my best friend and I had several classes together. One day, she handed me...Reactions0reactionsComments5 comments
Transitioning From Pediatric to Adult CareSomeone diagnosed with epilepsy as a child will likely need to transition their pediatric-centered care to an adult setting before a certain age. This can be a stressful time for...Reactions0reactionsComments0 comments
Time For MedicationTime to talk about sticking to taking medication at the correct time. Now that I am seizure-free with medication, the feeling of being consistent with my meds is great. I have...Reactions0reactionsComments2 comments
What Is Vagus Nerve Stimulation?Vagus nerve stimulation (VNS) is a type of epilepsy treatment that may stop or reduce seizures. A doctor implants a battery-powered device that looks like a pacemaker under the skin...Reactions0reactionsComments0 comments
The Holidays – An Annual Reminder of Memory Loss"Do you remember a few years ago when we went skiing for the holidays? It was so much fun!!" My stomach sinks whenever a seemingly innocent question regarding past holidays...Reactions0reactionsComments2 comments
How to End Epilepsy Stigma: Fighting Stigma with Cinema"When will there be a cure?" Everyone is asking. Though underfunded, epilepsy research has made progress in recent years. The word "cure" is tempting. It’s easy to forget that there...Reactions0reactionsComments0 comments
My DiagnosisThe Seattle Rock ’n Roll Marathon led to my epilepsy diagnosis in 2010, but the road to truly understanding my seizures stretched thousands of miles further than the 26.2 miles...Reactions0reactionsComments0 comments
Working Out With EpilepsyThere is so much mixed information about exercising with any type of seizure disorder. I want to start off by saying that I'm going to give you my personal experience...Reactions0reactionsComments4 comments
What Is An Epileptologist, and When Should I See One?If you or a loved one has epilepsy, you may have heard the term epileptologist. You may have wondered what the word means and how it applies to epilepsy care...Reactions0reactionsComments0 comments