When Nothing Works to Control SeizuresWhen my daughter was diagnosed at 6 months old with a rare form of epilepsy called infantile spasms, I knew very little about the disease. My ideas regarding epilepsy and...Reactions0reactionsComments2 comments
Epilepsy Awareness Month: "I Am More Than My Epilepsy"November is Epilepsy Awareness Month. In celebration of our community's incredible strength and resilience, we wanted to highlight all of the many things you are outside of your diagnosis. So...Reactions0reactionsComments0 comments
Epilepsy Awareness Month Giveaway 2022The Epilepsy Giveaway is now closed. Thank you for your interest! In honor of Epilepsy Awareness Month, we are giving away an awareness prize pack to help you cope with...Reactions0reactionsComments4 comments
Epilepsy and Access to Mental HealthcareContent Note: This article describes suicide and abuse. If you or a loved one are struggling, consider reading our mental health resources page. This year marked the 42nd year since...Reactions0reactionsComments1 comments
3 of My Biggest Seizure TriggersSituations known as triggers can cause seizures in some epileptic people. Seizures can also occur in some people for unknown reasons. Individuals may have different triggers. I have now been...Reactions0reactionsComments2 comments
Why Epilepsy Makes Us Feel Like We're Not "Normal"There are plenty of people like me, who if they don't make a determined effort to laugh and mix with others, can easily feel themselves swapped into a cold, dark...Reactions0reactionsComments2 comments
Breaking Up With SugarLet's talk about added sugar. Sugar is amazing! It has always been there for me. We've celebrated everything together. Birthdays. Graduations. Weddings. Game nights. We've relaxed together on hot summer...Reactions0reactionsComments0 comments
Becoming a Mom With EpilepsyI have been a writer for EpilepsyDisease.com for a couple of months, but endless hospital admissions kept me too busy to start writing. I'm currently pregnant and being very careful...Reactions0reactionsComments2 comments
My Brain, Cognition, Side Effects... Who Is the REAL Me?I've constantly been on medications for the last 52 of my 59 years. With 20/20 hindsight, my epilepsy and my unemployability at the time were clearly a blessing because I...Reactions0reactionsComments1 comments
Hiding Epilepsy From My Family and FriendsDo you try to hide your epilepsy from your family, friends, or loved ones? Yes. I do hide my epilepsy auras. This is something that I frequently do. I do...Reactions0reactionsComments0 comments
Why Are Seizures Scary?My first seizure jolted all 3 of my college roommates out of bed. Yelling, blood, and convulsions shocked and scared them because I had been a healthy college athlete up...Reactions0reactionsComments5 comments
The Ketogenic Diet for EpilepsyEarly in my son's epilepsy diagnosis, I searched for ways to stop the myoclonic seizures that ravaged his body. He would have hundreds of small body twitches daily and I knew...Reactions0reactionsComments0 comments
Weather, Storms, and the Effect on EpilepsyFor the most part, I've always loved thunderstorms. Growing up in Minnesota, we would get some truly gorgeous storms. Arizona's monsoon season reminds me of Minnesota's spring. When I moved...Reactions0reactionsComments0 comments
Keeping a Journal to Help Avoid SeizuresEver keep a diary? Let me suggest: Start one. No, I don’t mean mush like, "Dear Diary, We went boating with the Jones, and I caught a fish!" I’m talking...Reactions0reactionsComments0 comments
Pregnancy and Epilepsy: Top 3 QuestionsMy husband and I have decided we are ready to continue growing our family. Since we have made this decision, I have received a lot of epilepsy-related pregnancy questions. Here's...Reactions0reactionsComments0 comments
Sleep-Deprived EEG Versus Ambulatory EEG: What Are They Like?EEGs (electroencephalograms): we've all had them and few of us love them. I am thankful for their existence. My first EEG diagnosed me with epilepsy which has helped lead me...Reactions0reactionsComments0 comments
Demystifying EpilepsyMatthew was 6 years old when diagnosed with epilepsy and he stayed in a typical classroom from kindergarten through second grade. During that time, he also played baseball and soccer...Reactions0reactionsComments0 comments
When COVID Hit HomeI once survived a Louis Tomlinson show, and that's saying something considering people who didn't have epilepsy were going down like flies in a bug zapper light. Let me know...Reactions0reactionsComments0 comments
Going to Concerts and Movies With Photosensitive EpilepsyI love outdoor concerts! I have since I was a teenager. Fresh air and music with amazing people, it’s a great combination! The 2 best outdoor concerts I've ever been...Reactions0reactionsComments4 comments
Can You Die From Epileptic Seizures?Can you die from epileptic seizures? At first, I didn't want to know the answer, but my very first seizure was an indication of how serious they can be. One...Reactions0reactionsComments3 comments