Uphill Both Ways: Transportation Challenges With EpilepsyDriving is such an essential part of most – but not all – people's lives. What if you can't drive? Every state has a time span that a person who... By Gabrielle Foote3 min readBookmark for laterReactions 0 reactions Comments7 comments
Mental Health and Living With Epilepsy in MalaysiaBefore we discuss mental health and epilepsy, let me talk a bit about where I am from. Malaysia is where I live and have experienced what it's like to be... By Nisshaa Muniandy3 min readBookmark for laterReactions 0 reactions Comments1 comments
The 2024 Social Health Awards ProgramWe are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards program recognizing Health Leaders who make a difference... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Are There Any Foods People With Epilepsy Should Avoid?Food brings people together. We eat with our loved ones to celebrate milestones or just to catch up. But if you live with seizures due to epilepsy, are there certain... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments5 comments
Living With an Invisible IllnessI am what many would call a statistic. Many of you, your friends, and your loved ones are too. What category am I referring to? The category that wasn't of... By Anita Meeks8 min readBookmark for laterReactions 0 reactions Comments2 comments
Averys Fight With Glycine encephalopathy (GCE)/ Nonketotic hyperglycinemiaAvery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due to a defect in her GLDC gene in... By AndieN7772 min readBookmark for laterReactions 0 reactions Comments1 comments
Childhood Absence Epilepsy: Will My Daughter Inherit It From Me?I have written previously about my seizure disorder and how I have absence seizures. One of my greatest hopes it that my children will not inherit this condition from me... By Gabrielle Foote3 min readBookmark for laterReactions 0 reactions Comments2 comments
Dating With Epilepsy: 3 Ways to Navigate Dating When Your Seizures Are ActiveDating is a task within itself. I had been seizure-free for 3 years, up until recently. To be honest, epilepsy has been my little dark secret. The thing that I... By Derra Howard3 min readBookmark for laterReactions 0 reactions Comments1 comments
Is Epilepsy a Disease or Disorder?When I was first diagnosed with epilepsy in 2010, I just assumed epilepsy was a disease. Like cancer or heart disease, it can impact anyone and has multiple causes. But... By Stacia Kalinoski2 min readBookmark for laterReactions 0 reactions Comments4 comments
Become an EpilepsyDisease.com Patient LeaderUpdate: The application is now closed. Would you like to share your experience with epilepsy and help others who are also living with the condition? Whether you live with epilepsy... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Sleepless Brain, Sleepless NightsHaving epilepsy, it is so important that we listen to our bodies and ensure that we are getting enough rest. Easier said than done – without a doubt for many... By Anita Meeks4 min readBookmark for laterReactions 0 reactions Comments0 comments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year of failed medications and failed brain surgeries. "Why... By Hailey Adkisson3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: What Has Epilepsy Taught You?No epilepsy journey is the same. Its ups and downs, its challenges and obstacles – epilepsy can take its toll. But like all of life's hardest parts, it also can... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
10 Things You Need To Know About EpilepsyEpilepsy is often overlooked and not talked about. Yet, it is a very common disorder around the world. First things first, what is epilepsy? It's a disorder that causes seizures... By Derra Howard2 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of anti-seizure drugs, being easily accessible for questions, or... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Mourning the Child You Thought You HadWhen Matthew was born, he was full term, had a high Apgar score and was just as perfect as a baby could be. He hit all his milestones as any... By Kathleen Lear3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask Real Patients: Is Epilepsy Misunderstood?For those living with epilepsy, it can feel like others just don't get it. Seizures, medications, side effects, anxiety, stigma... Epilepsy can affect so many aspects of everyday life. Managing... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Coping with Difficult Caregiver Decisions"We made the best decision based on the information we had at the time." It's the mantra I repeat to myself when the feeling of guilt starts to creep in... By Hailey Adkisson3 min readBookmark for laterReactions 0 reactions Comments0 comments
Fear of the Next SeizureEpilepsy is unpredictable. Knowing if or when the next seizure will strike can cause immense stress and anxiety. These feelings can weigh heavy on someone living with a seizure disorder... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments7 comments
Ask the Advocates: Your Epilepsy Treatment JourneyTreating epilepsy is not an exact science. For each individual patient, what works and what doesn't work will vary. An anti-seizure drug that works for one person may not work... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments