How to End Epilepsy Stigma: Fighting Stigma with Cinema"When will there be a cure?" Everyone is asking. Though underfunded, epilepsy research has made progress in recent years. The word "cure"...reactionscomments
Worthy of WorkIf somebody is experiencing active, ongoing seizures then it can be hard to maintain a working position. Even when somebody's epilepsy is...reactions5comments
Epilepsy & My IdentityA person's identity is so important. Oxford Learner's Dictionary defines "identity" in three ways. Until a couple of years ago, my identity...reactionscomments
Little Seizures, Big Consequences: Recognizing Signs of Infantile SpasmsPrior to August 2020, I knew very little about epilepsy. What I did know came from movies and TV shows. I pictured...reactionscomments
Working Out With EpilepsyThere is so much mixed information about exercising with any type of seizure disorder. I want to start off by saying that...reactions4comments
My Experience With BriviactI feel confident in talking about my newest medication. I have now been on it for 366 days. (I want to make...reactions4comments
Become an EpilepsyDisease.com Patient LeaderUpdate: The application is now closed. Would you like to share your experience with epilepsy and help others who are also living...reactionscomments
The School of EpilepsyAs a 33-year-old, I have learned a lot of lessons in my life. Sometimes from kind mentors and sometimes by life events...reactions7comments
Averys Fight With Glycine encephalopathy (GCE)/ Nonketotic hyperglycinemiaAvery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due...reactions1comment
Childhood Absence Epilepsy: Will My Daughter Inherit It From Me?I have written previously about my seizure disorder and how I have absence seizures. One of my greatest hopes it that my...reactions2comments
Ask the Advocates: What Has Epilepsy Taught You?No epilepsy journey is the same. Its ups and downs, its challenges and obstacles – epilepsy can take its toll. But like...reactionscomments
Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of...reactionscomments
Sleepless Brain, Sleepless NightsHaving epilepsy, it is so important that we listen to our bodies and ensure that we are getting enough rest. Easier said...reactions2comments
“Why?”: How Avoiding This Question Has Helped Me Cope With My Daughter’s Epilepsy Diagnosis"Why?" It's the question I asked myself over and over after my daughter's epilepsy diagnosis and throughout much of the next year...reactionscomments
I "Also" Have Epilepsy: On Seizures and IdentityWe need to talk. As someone who has never meditated longer than 18 minutes, and might as well have found this quote...reactionscomments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with epilepsy...reactionscomments
My Seizure Action PlanWhen I first found out about my seizure disorder I didn't know where to start. I had a list of "don'ts." "Don't...reactionscomments
My DiagnosisThe Seattle Rock ’n Roll Marathon led to my epilepsy diagnosis in 2010, but the road to truly understanding my seizures stretched...reactionscomments
Living Your Best Epileptic LifeHave you ever felt the disappointment of waking up, wishing you had the energy and the mental clarity to go about your...reactions3comments
