When Nothing Works to Control SeizuresWhen my daughter was diagnosed at 6 months old with a rare form of epilepsy called infantile spasms, I knew very little...reactions2comments
Epilepsy Awareness Month: "I Am More Than My Epilepsy"November is Epilepsy Awareness Month. In celebration of our community's incredible strength and resilience, we wanted to highlight all of the many...reactionscomments
Epilepsy and Access to Mental HealthcareContent Note: This article describes suicide and abuse. If you or a loved one are struggling, consider reading our mental health resources...reactions1comment
Learning Seizure First AidNovember is Epilepsy Awareness Month! Time to find your smile and purple attire. Purple represents epilepsy awareness, and your smile represents your...reactions3comments
Keeping a Journal to Help Avoid SeizuresEver keep a diary? Let me suggest: Start one. No, I don’t mean mush like, "Dear Diary, We went boating with the...reactions1comment
When COVID Hit HomeI once survived a Louis Tomlinson show, and that's saying something considering people who didn't have epilepsy were going down like flies...reactionscomments
Epilepsy and Migraines: A Pain in the HeadA quiet and dark room, cold compress, Ibuprofen, and Tylenol... Oh, migraine we meet again! At times I've had some truly debilitating...reactionscomments
Epilepsy Support Groups Give Us Superhero StrengthEven superheroes with amazing powers find enemies who are too overpowering to fight by themselves, but they're not too proud to team...reactionscomments
How to End Epilepsy Stigma: Fighting Stigma with Cinema"When will there be a cure?" Everyone is asking. Though underfunded, epilepsy research has made progress in recent years. The word "cure"...reactionscomments
Worthy of WorkIf somebody is experiencing active, ongoing seizures then it can be hard to maintain a working position. Even when somebody's epilepsy is...reactions5comments
Epilepsy & My IdentityA person's identity is so important. Oxford Learner's Dictionary defines "identity" in three ways. Until a couple of years ago, my identity...reactionscomments
Little Seizures, Big Consequences: Recognizing Signs of Infantile SpasmsPrior to August 2020, I knew very little about epilepsy. What I did know came from movies and TV shows. I pictured...reactionscomments
Working Out With EpilepsyThere is so much mixed information about exercising with any type of seizure disorder. I want to start off by saying that...reactions6comments
Become an EpilepsyDisease.com Patient LeaderUpdate: The application is now closed. Would you like to share your experience with epilepsy and help others who are also living...reactionscomments
The School of EpilepsyAs a 33-year-old, I have learned a lot of lessons in my life. Sometimes from kind mentors and sometimes by life events...reactions7comments
Averys Fight With Glycine encephalopathy (GCE)/ Nonketotic hyperglycinemiaAvery has Glycine encephalopathy (GCE) or nonketotic hyperglycinemia is an inborn error of glycine metabolism, inherited in an autosomal recessive manner due...reactions1comment
Childhood Absence Epilepsy: Will My Daughter Inherit It From Me?I have written previously about my seizure disorder and how I have absence seizures. One of my greatest hopes it that my...reactions2comments
Ask the Advocates: What Has Epilepsy Taught You?No epilepsy journey is the same. Its ups and downs, its challenges and obstacles – epilepsy can take its toll. But like...reactionscomments
Ask the Advocates: Your Care TeamWhen it comes to receiving epilepsy care, finding the right doctor can make all the difference. Whether it's having deep knowledge of...reactionscomments
Sleepless Brain, Sleepless NightsHaving epilepsy, it is so important that we listen to our bodies and ensure that we are getting enough rest. Easier said...reactions2comments
