caret icon Back to all discussions


Hello community! My name is Goeffrey. I am 35 and I live in Uganda. I had my first seizure when I was 26 and I couldn't tell how it came about and why. My first seizure happened in 2013 but since then I have not been on medication, but I have had l like 15 seizures in the last 10 years, but I last had one Sunday evening and now I had to go to hospital and when I talked to the doctor, he just gave me medication.and I started medication on Tuesday and I was given phenytoin. Does anyone else share a similar experience?

That is me

  1. Hey, Goeffrey! 👋 Derra Howard here, and wow, I appreciate you opening up and sharing your journey with us. It takes courage to talk about these experiences. Seizures can be unpredictable right? I started my epilepsy journey at 9, diagnosed at 10. I'm now 38.

    First off, big shoutout for taking that step to the hospital – getting the right help is crucial. Were you able to get a neurologist? Now, diving into the meds world, phenytoin is a common player in the epilepsy game. So, how's the phenytoin treating you so far? Any side effects, or are you feeling normal?

    Living with epilepsy can be like a rollercoaster at times. You never really know the twists and turns, but having a community to share the journey can make all the difference. Rally your people and we are here for the journey as well.

    Happy Monday!

    Derra Howard
    Epilepsy Team Member

    Please read our rules before posting.