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Memory and Mood

I have had epilepsy my entire life. They got much worse within the last couple of years and now I have them basically controlled by anti-seizure medication. I have focal seizures and I am 30 years old. I have been slowly loosing my memories my entire life though it hasn’t been taken seriously. People automatically assume I’m talking about “normal” memory problems people usually have with epilepsy and I’m not. When I began starting to have cluster seizures I began loosing my memories quickly. ASM has not helped my memory issues, in-fact they continue to get worse and worse. NOBODY except for my husband has believed me yet. Not even my doctor… It’s very lonely. I am also struggling with ADHD, depression and anxiety. It seems to me that my focal unaware seizures have caused all of this. Money has been a big issue since right now I can’t work, don’t have insurance and can’t get the tests I need. I was just wondering, has anyone else had dementia like symptoms at this young of an age? Also, do you also have ADHD/ depression anxiety symptoms as well?

  1. Only time my memory is affected is during or just after a seizure in my 53yrs of epilepsy. Look up all the geniuses thru history with seizures like Einstein Don't think theirs was either. One study to understand why so many geniuses w/seizures proved they stimulate parts of the brain not used regularly why creative thought occurs too.

    1. Doctors brushing it off? Been there, and it sucks. You know your body, and when you’re not being taken seriously, it’s beyond frustrating. Add in ADHD, depression, and anxiety, and it’s like your brain is running a marathon it didn’t sign up for. Money issues and no insurance just make it worse—you’re stuck in a system that doesn’t seem to care.

      1. When stressed I become "foggy" and sometimes have a seizures

        1. Hi, I'm 41 and I have had epilepsy for 5 and a half years. My memory is pretty bad, I forgot directions, sometimes forget why I went to a store and what I was getting, I usually forget someone's name right after getting it...thankfully I have a partner who helps me. I have to write things down, but even then I forget where I wrote it or even where I put the pad that I'd written it. I take B1 to help and it does a little.




          1. Hi there,


            I go through memory loss as well. Since my medication has. been increased my memory has gotten worse. I take certain vitamins to help me. I do write down things in my notes to remember. Also, speak with your healthcare provider about your memory.


            Here are some articles


            https://epilepsydisease.com/memory-loss

            https://epilepsydisease.com/living/memory-loss-seizures

            https://epilepsydisease.com/living/questions-to-ask-your-neurologist





            Derra Howard
            Epilepsy Team Leader

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