Has epilepsy affected your friendships?
Finding true, supportive friends can be hard for anyone! And when you're living with epilepsy, maintaining friendships can have unique challenges.
Has epilepsy affected your friendships? Has your condition made it hard to make or keep friends?
Tell us about your experiences, and any advice you may have for finding true, supportive friends. 💜
Male 55 - I was first diagnosed at the age of 7, school was very hard for me. My peers saw me as different and the teachers didn't understand epilepsy, in all honesty neither did my parents. Yes I was beat, kicked, bitten at school and nothing done about it!
I grew up alone other than one or two other ostracized friends that I would talk to and the older girls who wanted to mother me.
I therefore did everything I could to prove I could do everything what everyone else could include put my life in danger in the sea! It lead me getting into trouble with girls at an early age and also with the police.
I am married now with children and a very good job, socially I struggle in new situations without people I know around me. I much prefer a female environment to a male one because that's what I grew up in. I am happy now but life has been hard and this is the first time I have spoken so Frank about it. @
I am so glad you had the courage to speak so openly and honestly with us. Our community understands and you are welcome to share when ever you want. You have been through so much, I hope by expressing these words, in some way, helped. Jill (Team Member)
Yes it has but one man showed me that the friends who backed out on me were not my friends and he has been a life long friend since we were kids and never backed off on me one time for my seizures and always helped me out with anything I needed and that showed me who a real friend is
I love that you have this life long friend who is always by your side. That is a true friend. Jill (Team Member)
I feel alone and I want friends with seizures
we understand feeling alone. I hope you find community within our site. While I know it is not the same as in person, we’re always here to listen and support you💙. Have you ever looked into support groups in your area? Sending positive thoughts and well wishes, Julie (team member)
After Iraq a kid and just few years of seizures my wife left me. :-/ Then my mother moves down, I get brain surgery, try other meds, and start to become seizure free (for the most part. Went from multiple a day to 1 randomly godknowing). Luckily I still have my best friend from 30 yrs ago. 😀 ,my son, and as sad as it is my mom, lol.
